Kovacs P J
School of Social Work, Virginia Commonwealth University, 1001 West Franklin Street, Richmond, VA 23284-2027, USA.
Hosp J. 2000;15(3):55-62.
While research has always been an important component of the hospice movement in this country, increasingly hospices are involved in research as a result of demands for outcome measures and greater accountability. In addition to the more traditional research strategies, hospice researchers are encouraged to use participatory action research (PAR) in their efforts to better understand, document, and evaluate services. This article describes PAR and provides an example of a modified usage of PAR with a hospice program serving persons with AIDS. Whether used primarily in the planning phase of research or in conducting and reporting results as well, PAR maximizes input from those who know hospice best-staff, volunteers, patients, and caregivers.
尽管在这个国家，研究一直是临终关怀运动的一个重要组成部分，但由于对结果衡量和更高问责制的要求，临终关怀机构越来越多地参与到研究中。除了更传统的研究策略外，临终关怀研究人员还被鼓励使用参与式行动研究（PAR），以更好地理解、记录和评估服务。本文介绍了参与式行动研究，并提供了一个修改后的参与式行动研究在为艾滋病患者服务的临终关怀项目中的应用示例。无论主要用于研究的规划阶段，还是用于开展和报告结果，参与式行动研究都能最大限度地吸纳最了解临终关怀的人员——工作人员、志愿者、患者和护理人员——的意见。
