Swift T L, Wilson S L
Centre for Ethics in Medicine, University of Bristol, UK.
Brain Inj. 2001 Feb;15(2):149-65. doi: 10.1080/026990501458380.
The purpose of this pilot study was to investigate the lack of knowledge and misconceptions concerning brain injury, as perceived by those with experience of the condition. Using a qualitative research method, 19 semi-structured interviews were conducted with brain-injured individuals, caregivers and professionals who provide social rehabilitation after brain injury. Interviews were analysed using Interpretative Phenomenological Analysis. According to participants, inaccurate and inadequate knowledge about brain injury is common among the general public and among health professionals without expertise in the field of brain injury. The major themes that emerged from the analysis were: inaccurate beliefs about recovery time and possible extent of recovery from brain injury; lack of awareness of the diversity ofproblems it can cause, particularly the existence of behavioural and cognitive sequelae; misconceptions about the capabilities of brain-injured people depending on the visibility or invisibility of their disability: and misidentification of brain-injured individuals as mentally ill or learning disabled. Results are discussed in terms of a theory of illness cognition. Posibilities for further research are discussed, and it is concluded that the results of this study could help guide future information provision to all who may come into contact with brain injury.
这项初步研究的目的是调查那些有脑损伤经历的人所察觉到的关于脑损伤的知识缺乏和误解情况。采用定性研究方法,对脑损伤患者、照料者以及提供脑损伤后社会康复服务的专业人员进行了19次半结构化访谈。运用解释现象学分析方法对访谈进行了分析。根据参与者的说法,普通公众以及在脑损伤领域缺乏专业知识的卫生专业人员中,对脑损伤的认识不准确且不充分的情况很常见。分析中出现的主要主题包括:对脑损伤恢复时间和可能恢复程度的错误认知;对其可能导致的问题多样性缺乏认识,尤其是行为和认知后遗症的存在;根据残疾的可见或不可见性对脑损伤患者能力的误解;以及将脑损伤个体错误识别为患有精神疾病或学习障碍。研究结果依据疾病认知理论进行了讨论。探讨了进一步研究的可能性,并得出结论,本研究结果有助于指导未来向所有可能接触到脑损伤的人提供信息。