Fergerson G
New York University's Robert F. Wagner Graduate School of Public Service, USA.
J Urban Health. 2001 Mar;78(1):81-7. doi: 10.1093/jurban/78.1.81.
Culture and class remain contested terrains in policy narratives about the right of the urban poor to access health and social services delivery systems under welfare reform. An urban bioethics agenda is needed to address these dilemmas that have arisen in the context of PRWORA and had an impact on access to health and social services in the urban environment. Such efforts, however, must address the intellectual framing of the urban poor, as well as the public policies that inscribe deterministic and stereotypical ideas about the poor alongside incomplete portraits of barriers to greater social and occupational mobility. The focus of social science researchers on the delineation of behavioral characteristics among an urban “underclass” in some instances further marginalizes and stigmatizes an already isolated urban poor. Even though Wilson, the Harvard sociologist who popularized the term “underclass” in his earlier research, has now largely disowned it, tales and stories a bound in the social policy and health literature. The media also commonly underscore perceptions that establish rumor as social science and promote stereotypes that the poor are lazy and unwilling to work. Wilson, who has analyzed contextual and neighborhood factors such as the migration of jobs to the suburbs, has also declared stance that is in opposition to those, such as New York University political science professor Lawrence Mead, who embrace a “culture of poverty” thesis and have set the tone for some welfare reform initiatives by arguing that behavior, and not joblessness, is the key, “My guess,” Mead stated after welfare reform was enacted in 1996, ”is that culture came first, and drove away the economy or the good jobs, rather than the other way around,” These statements continue to have dramatic impacts on the stigmas attached to public programs by promoting the idea that those in spatially concentrated radical and ethnic groups in urban areas are not members of the working class. Such perceptions have also contributed to a belief that those who participate in publicly subsidized social welfare and health insurance programs do not work. Whether one accepts that the denial of health care to citizens and noncitizens in contemporary America derives in large part from the promotion of images of the poor as pathological, states have moved steadily to institute a variety of policies under welfare reform that continue to prescribe narrower eligibility criteria for access to service delivery systems. This is occurring as the US Congress hesitates to restore excluded populations, and there are reports of questionable practices targeted at those who are eligible based on current legislation. On several occasions, for example, the Civil Rights Division of the US Department of Health and Human Services has made inquiries (and issued sanctions) in cases for which state and local governments have discriminated against potential Medicaid and TANF applicants by ignoring regulations that stipulate that applications be delivered to applicants on request in a timely manner. While it is the explicit responsibility under welfare reform of the US Congress to pass legislation restoring eligibility to excluded populations, an urban bioethics agenda framed in a historical context has much to offer prevailing policy discourses. If, as political theorist Stone notes, a policy alternative is to be judged “by the company that it keeps,” then urban bioethicists can offer human rights paradigms and additional policy alternatives based an assessments of earlier historical experiences of stigmatization that embodied similar forms of evil.
在关于城市贫困人口在福利改革下获得医疗和社会服务体系权利的政策叙述中,文化和阶层仍然是有争议的领域。需要一个城市生物伦理议程来解决在《个人责任与工作机会协调法案》(PRWORA)背景下出现的、并对城市环境中获得医疗和社会服务产生影响的这些困境。然而,此类努力必须解决对城市贫困人口的认知框架问题,以及那些将关于穷人的决定论和刻板观念与阻碍更大社会和职业流动的不完整描述交织在一起的公共政策。社会科学研究人员在某些情况下对城市“下层阶级”行为特征的界定,进一步边缘化并污名化了本就孤立的城市贫困人口。尽管在早期研究中普及了“下层阶级”一词的哈佛社会学家威尔逊,如今已基本不再使用这个词,但相关故事仍充斥在社会政策和健康文献中。媒体也普遍强化了一些观念,将谣言当作社会科学来传播,并宣扬穷人懒惰且不愿工作的刻板印象。威尔逊分析了诸如工作岗位向郊区迁移等背景和社区因素,他也表明了与一些人相反的立场,比如纽约大学政治学教授劳伦斯·米德,后者秉持“贫困文化”论点,并通过主张行为而非失业才是关键,为一些福利改革举措定下了基调。米德在1996年福利改革实施后表示:“我猜是文化先出现,赶走了经济或好工作,而不是相反。”这些言论通过宣扬城市中空间集中的激进和族裔群体中的人不属于工人阶级这一观念,继续对附加在公共项目上的污名产生巨大影响。这种观念还导致了一种看法,即那些参与公共补贴的社会福利和医疗保险项目的人不工作。无论人们是否认为当代美国公民和非公民被剥夺医疗保健在很大程度上源于将穷人描绘成病态的形象,各州在福利改革下稳步推行了各种政策,继续为获得服务体系规定更严格的资格标准。与此同时,美国国会在恢复被排除群体资格问题上犹豫不决,而且有报道称针对那些根据现行立法符合资格的人存在可疑行为。例如,美国卫生与公众服务部民权司曾多次就州和地方政府歧视潜在医疗补助和临时援助项目申请人一事进行调查(并实施制裁),这些政府无视规定,即应根据申请及时向申请人提供申请材料。虽然根据福利改革,美国国会有明确责任通过立法恢复被排除群体的资格,但置于历史背景下构建的城市生物伦理议程能为当前的政策话语提供很多东西。正如政治理论家斯通所指出的,如果要根据“与之相伴的事物”来评判一个政策选项,那么城市生物伦理学家可以基于对早期体现类似邪恶形式的污名化历史经历的评估,提供人权范式和其他政策选项。