Gillibrand W, Flynn M
Faculty of Health, Department of Primary and Community Nursing, Greenbank Building, University of Central Lancashire, Preston PR1 2HE, UK.
J Adv Nurs. 2001 May;34(4):501-10. doi: 10.1046/j.1365-2648.2001.01779.x.
The purpose of this study was to explore and describe the patients' perceptions of the Diabetic Disease State and its complications using an ethnographic method.
Diabetes mellitus is an extensively researched and studied disease, however, relatively little attention has been given to the lived experience of chronic illness.
A purposive sample of 18 people with diabetes was derived from a diabetes register database. Data were collected by semistructured interviews, which were tape-recorded and transcribed. The transcripts were analysed together with the researchers' observational notes, using open coding procedures to identify main categories. Discussion of the results is made in the theoretical context of the locus of control (LOC) framework.
Three main categories emerged from the data: information-knowledge of illness; the psychological burden of diabetes; rationalizing. A further subcategory, reality avoidance, was identified. The findings showed that these people with diabetes experience and describe complex psychological effects and coping mechanisms in having a chronic illness.
The findings also suggested that participants in this study might have felt that the control of their chronic condition had been externalized to the health care professionals responsible for their care.
本研究旨在运用人种志方法探索并描述患者对糖尿病病情及其并发症的认知。
糖尿病是一种经过广泛研究的疾病，然而，对慢性病患者实际生活体验的关注相对较少。
从糖尿病登记数据库中选取了18名糖尿病患者作为目标样本。通过半结构化访谈收集数据，访谈进行录音并转录。使用开放式编码程序，将转录文本与研究人员的观察记录一起进行分析，以确定主要类别。在控制点（LOC）框架的理论背景下对结果进行讨论。
数据中出现了三个主要类别：疾病信息知识；糖尿病的心理负担；合理化。还确定了一个进一步的子类别，即现实回避。研究结果表明，这些糖尿病患者在患有慢性病时经历并描述了复杂的心理影响和应对机制。
研究结果还表明，本研究的参与者可能觉得他们慢性病的控制已被外化给负责其护理的医护人员。
