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癫痫患者的生活质量(匈牙利调查)

Quality of life of patients with epilepsy (Hungarian survey).

作者信息

Lám J, Rózsavölgyi M, Soós G, Vincze Z, Rajna P

机构信息

Semmelweis University, University Pharmacy, Institute of Pharmacy Administration, Hungary.

出版信息

Seizure. 2001 Mar;10(2):100-6. doi: 10.1053/seiz.2000.0461.

Abstract

We assessed the quality of life (QOL) of patients with epilepsy using the Quality of Life in Epilepsy Inventory (QOLIE-31). As the first step we compared our results with the data from an American survey in order to validate the test in Hungary. The results show that the Hungarian values were lower but that they followed the same trends as the American data. There was only one controversial result in the question-group of the 'the effects of treatment', which could be explained by the differences in habits and conventions, opportunities and expectations between Hungarian and American epileptic patients. We found significant differences in many aspects of quality of life with respect to (a) gender (general quality of life, seizure worry), (b) pharmacological treatment form (cognitive functions, medication effects, total score and social and role functioning) and (c) economic activity of patients (cognitive functions, emotional well-being, energy/fatigue, medication effects, overall quality of life, overall scores, seizure worry, social and role functioning). We have tried to explain the differences found by taking either the characteristics of epilepsy or the social background of the epileptic patient into consideration. Based on previous knowledge we have tried to define the situations where the assessment of quality of life for people with epilepsy, may be beneficial to their core.

摘要

我们使用癫痫患者生活质量量表(QOLIE - 31)评估了癫痫患者的生活质量(QOL)。作为第一步,我们将我们的结果与一项美国调查的数据进行了比较,以便在匈牙利验证该测试。结果表明,匈牙利的数据值较低,但它们与美国数据遵循相同的趋势。在“治疗效果”问题组中只有一个有争议的结果,这可以用匈牙利和美国癫痫患者在习惯和习俗、机会和期望方面的差异来解释。我们发现,在生活质量的许多方面存在显著差异,涉及(a)性别(总体生活质量、癫痫发作担忧)、(b)药物治疗形式(认知功能、药物效果、总分以及社会和角色功能)以及(c)患者的经济活动(认知功能、情绪健康、精力/疲劳、药物效果、总体生活质量、总分、癫痫发作担忧、社会和角色功能)。我们试图通过考虑癫痫的特征或癫痫患者的社会背景来解释所发现的差异。基于先前的知识,我们试图确定对癫痫患者生活质量进行评估可能对其核心有益的情况。

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