Ruddick William
Bioethics. 1999 Jul;13(3-4):343-57. doi: 10.1111/1467-8519.00162.
Convinced of hope's therapeutic benefits, physicians routinely support patients' false hopes, often with family collusion and vague, euphemistic diagnoses and prognoses, if not overt lies. Bioethicists charge them with paternalistic violations of Patient Autonomy. There are, I think, too many morally significant exceptions to accept the physician's rationales, or the bioethicist's criticisms, stated sweepingly. Physicians need to take account of the harms caused by loss of hopes, especially false hopes due to deception, as well as of the harms of successfully maintained deceptive hopes. As for autonomy, hopes -- even if based on deception -- can protect and enhance autonomy, understood broadly as the capacity to lead a chosen or embraced life. Deception aside, patients' hopes often rest on beliefs about possible rather than probable outcomes -- beliefs themselves supported by optimism, 'denial', or self-deception. Such 'possibility-hopes' may conflict with physicians' often more fact-sensitive 'probability hopes.' To resolve such conflicts physicians may try to 'down-shift' patients' or parents' hopes to lesser, more realistic hopes. Alternatively, physicians may alter or enlarge their own professional hopes to include the 'vital hopes' that define the lives of patients or parents, as well as 'survival hopes' needed to face and bear the loss of loved ones, especially children. A principle of Hope-giving might help guide such sympathetic hope-accommodations. More generally, it would give Hope a distinct place among Beneficence, Autonomy, and the other moral factors already highlighted by canonical principles of Medical Ethics. To formulate such a principle, however, we will need a collective Project Hope to pursue deeper philosophical and psychological studies.
由于坚信希望具有治疗功效,医生常常支持患者的虚假希望,若不是公然撒谎,也往往会与患者家属串通,给出模糊、委婉的诊断和预后。生物伦理学家指责他们这种家长式做法侵犯了患者的自主权。我认为,存在太多具有重大道德意义的例外情况,无法一概接受医生的理由或生物伦理学家的批评。医生需要考虑因希望破灭,尤其是因欺骗导致的虚假希望破灭所造成的伤害,以及成功维持欺骗性希望所带来的伤害。至于自主权,希望——即使是基于欺骗——也能够保护和增强自主权,从广义上讲,自主权是指过一种选择或接受的生活的能力。抛开欺骗不谈,患者的希望往往基于对可能而非很可能发生的结果的信念——这些信念本身又受到乐观主义、“否认”或自我欺骗的支持。这种“可能性希望”可能与医生通常更基于事实的“概率希望”相冲突。为了解决此类冲突,医生可能会试图将患者或其父母的希望“调低”至更低、更现实的水平。或者,医生可能会改变或扩大自己的职业希望,将界定患者或其父母生活的“至关重要的希望”以及面对和承受失去亲人,尤其是孩子所需的“生存希望”纳入其中。给予希望的原则或许有助于指导这种富有同情心的希望调适。更普遍地说,它将使希望在仁爱、自主权以及医学伦理规范原则已经突出强调的其他道德因素中占据独特地位。然而,要制定这样一个原则,我们需要一个集体的“希望工程”来开展更深入的哲学和心理学研究。