Surlis S, Hyde A
Intensive Care Unit, Adelaide and Meath Hospital, Dublin, Ireland.
J Assoc Nurses AIDS Care. 2001 Nov-Dec;12(6):68-77. doi: 10.1016/S1055-3290(06)60185-4.
The aim of this research study was to explore, within an Irish context, HIV-positive patients' experiences of hospitalization and particularly their experiences of nursing care. This article reports on one of the dominant themes to emerge in the study--the experience of stigma during hospitalization among persons with HIV. A volunteer sample of 10 former inpatients of hospitals in the Republic of Ireland's capital, Dublin, were interviewed in depth, and the resulting data were analyzed using a qualitative content analysis. Findings indicate that while some participants experienced stigma from nurses, such stigma was stratified according to the means by which the disease had been contracted, with drug users expressing the greatest feelings of stigma from nurses. Data also suggest that the type of nursing care favored by many participants was that of segregated care within specialized units. This type of care was preferred because it enabled the patient to avoid being discredited by other patients who did not have the virus. This environment also offered the potential of social support from other patients with similar diagnoses. Finally, patients experienced breaches in confidentiality because of institutional policies that made their disease conspicuous and from some nurses' nonchalance in handling information about their disease. The analysis used in this study draws on Goffman's conceptualizations of stigma to explain the social process underlying the accounts given by study participants.
本研究的目的是在爱尔兰背景下,探究艾滋病毒呈阳性患者的住院经历,尤其是他们的护理体验。本文报告了该研究中出现的一个主要主题——艾滋病毒感染者住院期间的耻辱经历。对爱尔兰首都都柏林的10名曾住院的志愿者进行了深入访谈,并采用定性内容分析法对所得数据进行了分析。研究结果表明,虽然一些参与者遭受了护士的耻辱对待,但这种耻辱是根据感染疾病的途径进行分层的,吸毒者感受到护士的耻辱感最强。数据还表明,许多参与者青睐的护理类型是在专门病房进行隔离护理。这种护理方式之所以受到青睐,是因为它能使患者避免被其他未感染病毒的患者诋毁。这种环境也提供了获得其他诊断相似患者社会支持的可能性。最后,由于机构政策使他们的疾病引人注目,以及一些护士在处理他们疾病信息时的漠不关心,患者经历了隐私泄露。本研究中使用的分析借鉴了戈夫曼对耻辱的概念,以解释研究参与者所讲述内容背后的社会过程。