Bottos M, Bolcati C, Sciuto L, Ruggeri C, Feliciangeli A
Childhood Neuromotor Disabilities Centre, Azienda USL Città di Bologna, Italy.
Dev Med Child Neurol. 2001 Nov;43(11):769-77. doi: 10.1017/s0012162201001402.
The aim of this study was to assess the effect of early provision (< or = 8 years) of a powered wheelchair (PWC) in children with tetraplegia. Twenty-nine children (15 males, 14 females; mean age 6 years 3 months, age range 3 to 8 years) with spastic or dystonic tetraplegia were studied. All participants had severe motor impairment. Treatment outcomes were investigated in several dimensions of disablement: Impairment, Functional Limitation/Activity, Disability/Participation. It was found that the level of independence improved significantly after PWC provision, while motor impairment, IQ, and quality of life did not. The majority of children (21 of 27) reached a level of driving competence which allowed them to move around with or without minimal (i.e. verbal) adult support. Achievement of this competence was not statistically related to IQ or motor impairment but correlated to the time spent in the PWC. The majority of parents (21 of 25) were not in favour of the PWC when the study started but after PWC provision, 23 of 25 parents expressed positive feelings about it. Reactions of the majority of children (23 of 25) were positive from the beginning of the study and did not change over time. The authors concluded that PWCs can aid independence and socialization and the majority of children can achieve a good-enough driving competence, even those with severe learning disability or motor deficit. PWCs should not be viewed as a last resort but as a means of providing efficient self-locomotion in children with a severe motor deficit.
本研究的目的是评估为四肢瘫痪儿童早期(≤8岁)提供电动轮椅(PWC)的效果。对29名患有痉挛性或张力障碍性四肢瘫痪的儿童(15名男性,14名女性;平均年龄6岁3个月,年龄范围3至8岁)进行了研究。所有参与者均有严重的运动障碍。从残疾的几个维度对治疗结果进行了调查:损伤、功能受限/活动、残疾/参与。结果发现,提供电动轮椅后,儿童的独立水平显著提高,而运动障碍、智商和生活质量并未改善。大多数儿童(27名中的21名)达到了一定的驾驶能力水平,这使他们能够在有或没有最低限度(即言语)成人支持的情况下四处活动。达到这种能力水平在统计学上与智商或运动障碍无关,但与使用电动轮椅的时间相关。大多数家长(25名中的21名)在研究开始时不赞成使用电动轮椅,但在提供电动轮椅后,25名家长中有23名表达了积极的看法。大多数儿童(25名中的23名)从研究开始就反应积极,且随时间没有变化。作者得出结论,电动轮椅有助于提高独立性和社交能力,大多数儿童,即使是那些有严重学习障碍或运动缺陷的儿童,也能达到足够好的驾驶能力。电动轮椅不应被视为最后的手段,而应被视为为严重运动缺陷儿童提供有效自我移动的一种方式。