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提升血友病患儿的自尊心。

"Camping up" self-esteem in children with hemophilia.

作者信息

Thomas D, Gaslin T C

机构信息

School of Nursing, University of Louisville, Louisville, Kentucky, USA.

出版信息

Issues Compr Pediatr Nurs. 2001 Oct-Dec;24(4):253-63. doi: 10.1080/014608601753260344.

DOI:10.1080/014608601753260344
PMID:11769210
Abstract

Children with hemophilia have often been viewed at greater risk for altered self-esteem than their healthy counterparts. Our article shares the positive effects of the camp experience on children with hemophilia and subsequent enhancement of self-esteem. Interaction and support in the camp environment provide an opportunity for these children to gain independence and "prove" their self-worth and ability. Previous literature has provided a variety of findings on the relationship between chronic illness, such as hemophilia, and self-esteem alterations. We identify many opportunities for future education and research to provide quality nursing support to this unique population.

摘要

与健康儿童相比,血友病患儿往往被视为自尊心受损风险更高。我们的文章分享了夏令营经历对血友病患儿的积极影响以及随后自尊心的增强。夏令营环境中的互动和支持为这些孩子提供了获得独立并“证明”自身价值和能力的机会。以往文献对诸如血友病等慢性病与自尊心改变之间的关系有各种研究结果。我们确定了未来教育和研究的许多机会,以便为这一独特群体提供优质护理支持。

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引用本文的文献

1
Social participation and hemophilia: Self-perception, social support, and their influence on boys in Canada.社会参与与血友病:自我认知、社会支持及其对加拿大男孩的影响。
Res Pract Thromb Haemost. 2021 Nov 30;5(8):e12627. doi: 10.1002/rth2.12627. eCollection 2021 Dec.
2
Psychological interventions for people with hemophilia.针对血友病患者的心理干预措施。
Cochrane Database Syst Rev. 2020 Mar 18;3(3):CD010215. doi: 10.1002/14651858.CD010215.pub2.
3
Online Peer-to-Peer Mentoring Support for Youth with Hemophilia: Qualitative Needs Assessment.
针对血友病青年的在线点对点指导支持:定性需求评估。
JMIR Pediatr Parent. 2018 Jul 10;1(2):e10958. doi: 10.2196/10958.