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类风湿性关节炎患者的心理健康

Psychological wellbeing of patients with rheumatoid arthritis.

作者信息

Read E, McEachern C, Mitchell T

机构信息

East Gloucestershire NHS Trust, Cheltenham General Hospital.

出版信息

Br J Nurs. 2001;10(21):1385-91. doi: 10.12968/bjon.2001.10.21.9350.

DOI:10.12968/bjon.2001.10.21.9350
PMID:11865243
Abstract

The impetus for this multiphased project was the realization that rheumatoid arthritis (RA) is not only physically debilitating, but also a cause of severe psychological distress which is often unacknowledged. A small sample of patients (n=15) was interviewed to identify their main area of psychological distress caused by RA, and data were analysed thematically. These themes formed the basis of a questionnaire that was distributed to a random sample of inpatients and outpatients with RA. This larger sample (n=140) prioritised the areas of distress that were identified by the interviewed sample of patients. This led to the development of an education programme for nurses. The authors describe the impetus for the project, the activities and processes associated with data collection, and the development and evaluation of the education programme.

摘要

这个多阶段项目的推动因素是认识到类风湿性关节炎(RA)不仅会导致身体衰弱,还会引发严重的心理困扰,而这种困扰往往未得到重视。对一小部分患者(n = 15)进行了访谈,以确定他们因类风湿性关节炎而产生心理困扰的主要方面,并对数据进行了主题分析。这些主题构成了一份问卷的基础,该问卷被分发给类风湿性关节炎住院患者和门诊患者的随机样本。这个更大的样本(n = 140)对受访患者样本所确定的困扰领域进行了优先级排序。这促成了一项针对护士的教育计划的制定。作者描述了该项目的推动因素、与数据收集相关的活动和过程,以及教育计划的制定和评估。

相似文献

1
Psychological wellbeing of patients with rheumatoid arthritis.类风湿性关节炎患者的心理健康
Br J Nurs. 2001;10(21):1385-91. doi: 10.12968/bjon.2001.10.21.9350.
2
Perceptions of control in patients with rheumatoid arthritis.
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The impact on self-efficacy of different types of follow-up care and disease status in patients with rheumatoid arthritis--a randomized trial.类风湿关节炎患者不同类型随访护理和疾病状况对自我效能的影响——一项随机试验。
Patient Educ Couns. 2012 Jul;88(1):121-8. doi: 10.1016/j.pec.2012.01.012. Epub 2012 Mar 3.
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Nursing support at the onset of rheumatoid arthritis: Time and space for emotions, practicalities and self-management.类风湿关节炎发病时的护理支持:情感、实际问题及自我管理的时间与空间。
Musculoskeletal Care. 2008 Jun;6(2):124-34. doi: 10.1002/msc.115.
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Psychological stress in rheumatoid arthritis patients: a comparative Polish-German study: summary of the current conceptualization of the role of stress in rheumatoid arthritis.类风湿关节炎患者的心理压力:波兰-德国比较研究:当前对压力在类风湿关节炎中作用的概念化的总结。
Autoimmun Rev. 2010 Feb;9(4):211-5. doi: 10.1016/j.autrev.2009.08.005. Epub 2009 Aug 19.
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Self-helplessness in arthritis: an important but overlooked index.关节炎中的自我无助感:一个重要但被忽视的指标。
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[Short term (four weeks) in-patient rheumatoid arthritis (RA) education program for teaching patients how to cope with RA].[为期四周的类风湿性关节炎(RA)短期住院教育项目,用于教导患者如何应对类风湿性关节炎]
Nihon Rinsho. 2005 Jan;63 Suppl 1:626-30.
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The role of psychological distress and personality variables in the disablement process in rheumatoid arthritis.心理困扰和人格变量在类风湿关节炎致残过程中的作用。
Scand J Rheumatol. 2009 Nov-Dec;38(6):419-30. doi: 10.3109/03009740903015135.
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Social support and psychological distress in rheumatoid arthritis: a 4-year prospective study.类风湿关节炎患者的社会支持与心理困扰:一项为期 4 年的前瞻性研究。
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'Your whole life, your whole world, it changes': partners' experiences of living with rheumatoid arthritis.“你的整个人生,你的整个世界,都改变了”:类风湿关节炎患者伴侣的生活体验。
Musculoskeletal Care. 2010 Mar;8(1):46-54. doi: 10.1002/msc.165.

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