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["……但对许多人来说这也是一大步:从死亡边缘到生命的庆典……”。从患者角度看针对艾滋病毒阳性和艾滋病患者的常规护理及新的药物治疗可能性]

["... but it is for many also a large step: from the brink of death to the celebration of life...". Routine care with new drug treatment possibilities for HIV positive and AIDS patients from the viewpoint of patients].

作者信息

Fesenfeld Anke

出版信息

Pflege. 2002 Feb;15(1):6-14. doi: 10.1024/1012-5302.15.1.6.

DOI:10.1024/1012-5302.15.1.6
PMID:11915403
Abstract

New combination therapy provides a stabilization of health and a longer life expectancy for people living with HIV/AIDS who are able to deal with their drugs and the strict daily medical regime inflicted. This of course produces high expectations. Due to the success of the combination therapy, the psychosocial problems associated with it have been pushed to the background. How do people living with HIV/AIDS evaluate the changes that occurred since the introduction of the new combination therapy? Which changes affect their daily routine most? Is there a need for change in nursing care? In order to address these questions, this study attempts to grasp and analyse the changes and coping strategies of people that are treated with combination therapy at source. The results are discussed taking a perspective of positive change and support. The main aim of this study was to contribute to a better understanding of people living with HIV/AIDS that are treated with combination therapy and to improve their professional support.

摘要

对于能够应对所服用药物及严格日常医疗方案的艾滋病毒/艾滋病感染者而言,新的联合疗法可使他们的健康状况趋于稳定,并延长预期寿命。这自然引发了很高的期望。由于联合疗法取得成功,与之相关的社会心理问题已退居次要地位。艾滋病毒/艾滋病感染者如何评价自新联合疗法引入以来所发生的变化?哪些变化对他们的日常生活影响最大?护理工作是否需要做出改变?为回答这些问题,本研究试图从根源上把握和分析接受联合疗法治疗的人群的变化及应对策略。将从积极变化和支持的角度对研究结果进行讨论。本研究的主要目的是增进对接受联合疗法治疗的艾滋病毒/艾滋病感染者的了解,并改善对他们的专业支持。

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