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家族契约与基因检测

The family covenant and genetic testing.

作者信息

Doukas D J, Berg J W

机构信息

University of Pennsylvania, USA.

出版信息

Am J Bioeth. 2001 Summer;1(3):3-10. doi: 10.1162/152651601750417784.

DOI:10.1162/152651601750417784
PMID:11954587
Abstract

The physician-patient relationship has changed over the last several decades, requiring a systematic reevaluation of the competing demands of patients, physicians, and families. In the era of genetic testing, using a model of patient care known as the family covenant may prove effective in accounting for these demands. The family covenant articulates the roles of the physician, patient, and the family prior to genetic testing, as the participants consensually define them. The initial argument defines the boundaries of autonomy and benefit for all participating family members. The physician may then serve as a facilitator in the relationship, working with all parties in resolving potential conflicts regarding genetic information. The family covenant promotes a fuller discussion of the competing ethical claims that may come to bear after genetic test results are received.

摘要

在过去几十年里,医患关系发生了变化,这就需要对患者、医生和家庭相互冲突的需求进行系统的重新评估。在基因检测时代,采用一种名为“家庭契约”的患者护理模式可能会有效地兼顾这些需求。家庭契约明确了基因检测前医生、患者和家庭的角色,这些角色是由参与者协商确定的。初始论点界定了所有参与家庭成员的自主权和利益范围。然后,医生可以在这种关系中充当协调人,与各方共同解决有关基因信息的潜在冲突。家庭契约促进了对收到基因检测结果后可能出现的相互冲突的伦理主张进行更充分的讨论。

相似文献

1
The family covenant and genetic testing.家族契约与基因检测
Am J Bioeth. 2001 Summer;1(3):3-10. doi: 10.1162/152651601750417784.
2
The family covenant: a flawed response to the dilemmas of genetic testing.家庭契约:对基因检测困境的一种有缺陷的应对方式。
Am J Bioeth. 2001 Summer;1(3):17-8. doi: 10.1162/152651601750417829.
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The family covenant: addressing disclosure, families, and family physicians.
Am J Bioeth. 2001 Fall;1(4):W17.
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Genetic testing: a family affair.
Am J Bioeth. 2001 Summer;1(3):W1. doi: 10.1162/152651601753210861.
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American Society of Clinical Oncology policy statement update: genetic testing for cancer susceptibility.美国临床肿瘤学会政策声明更新:癌症易感性基因检测
J Clin Oncol. 2003 Jun 15;21(12):2397-406. doi: 10.1200/JCO.2003.03.189. Epub 2003 Apr 11.
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Family physicians and the family covenant model's usefulness in solving genetic testing conflicts.家庭医生与家庭契约模式在解决基因检测冲突中的作用。
Am J Bioeth. 2001 Summer;1(3):28-9. doi: 10.1162/152651601750417900.
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Whose genes are these anyway?: familial conflicts over access to genetic information.这些基因到底是谁的?:获取遗传信息引发的家族冲突。
Mich Law Rev. 1993 Jun;91(7):1854-908.
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The argument against a physician's duty to warn for genetic diseases: the conflicts created by Safer v. Estate of Pack.
J Health Care Law Policy. 1998;1(2):437-53.
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The Double Helix: Applying an Ethic of Care to the Duty to Warn Genetic Relatives of Genetic Information.《双螺旋:将关怀伦理应用于向基因亲属告知基因信息的义务》
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A physician's duty to warn family members of genetic risks: limiting the importance of Tarasoff.医生向家庭成员告知基因风险的责任:限制塔萨夫法则的重要性。
J Biolaw Bus. 2003;6(1):28-38.

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Beyond individualism: Is there a place for relational autonomy in clinical practice and research?超越个人主义:关系自主性在临床实践和研究中是否有一席之地?
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Approaching confidentiality at a familial level in genomic medicine: a focus group study with healthcare professionals.在基因组医学中探讨家庭层面的隐私保密问题:一项针对医疗保健专业人员的焦点小组研究。
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