Söderberg S, Lundman B
Department of Health Sciences, Luleå University of Technology, Sweden.
Health Care Women Int. 2001 Oct-Nov;22(7):617-31. doi: 10.1080/07399330127169.
Fibromyalgia (FM) is a chronic pain syndrome the hallmarks of which are a chronic diffuse musculoskeletal pain, tender points, and fatigue. The majority of those who have FM are middle-aged women. The aim of this study was to illuminate the transitions experienced by women with FM. Twenty-five women with FM were interviewed about living with FM. The interviews were analyzed using thematic content analysis. The analysis revealed five categories; transitions in patterns of daily life, family life, social life, and working life, and learning to live with the changes brought about by FM. The categories were subsumed into one theme: FM as the choreographer of activity and relationships. The transitions experienced were illuminated in a core story. The experience of transitions is apparently something that is invisible to almost everyone except the women themselves. Paradoxically, the women described transitions in life due to the illness, but they felt that other people saw them as healthy. It is like living in two worlds simultaneously, the world of the sick and the world of the healthy.
纤维肌痛(FM)是一种慢性疼痛综合征,其特征为慢性弥漫性肌肉骨骼疼痛、压痛点和疲劳。大多数纤维肌痛患者为中年女性。本研究的目的是阐明纤维肌痛女性所经历的转变。对25名纤维肌痛女性进行了关于患纤维肌痛生活情况的访谈。采用主题内容分析法对访谈进行分析。分析揭示了五个类别:日常生活模式、家庭生活、社交生活和工作生活中的转变,以及学会适应纤维肌痛带来的变化。这些类别被归纳为一个主题:纤维肌痛是活动和人际关系的编排者。所经历的转变在一个核心故事中得到了体现。除了女性自身外,几乎所有人显然都看不到这种转变的经历。矛盾的是,这些女性描述了因疾病导致的生活转变,但她们觉得其他人认为她们是健康的。这就如同同时生活在两个世界,患病的世界和健康的世界。