Tees, Esk & Wear Valleys NHS Foundation Trust, Middlesbrough, UK.
Disabil Rehabil. 2012;34(16):1358-66. doi: 10.3109/09638288.2011.645114. Epub 2012 Jan 23.
Fibromyalgia (FM) is a chronic syndrome characterized by pain and fatigue. The aim of this study was to explore how individuals with FM make sense of the illness experience and integrate it into their personal biographies.
Ten women from a pain management service in the north west of England were interviewed for the study. A chronological summary of each life story was produced and narrative features such as plot, tone, imagery and metaphors were identified and compared.
Findings are presented in the form of a meta-narrative incorporating all 10 narratives over five phases: (1) making sense of FM: when I was younger, I didn't have any problems at all; (2) onset and diagnosis: you just feel like you're constantly complaining; (3) invasion of FM: you're just trapped; trapped in this body; (4) coping with FM: you try to do things in a pattern it will obey and (5) ongoing struggle: I refuse to give in to it.
The narrative is characterized by a lack of movement and resolution, with participants engaged in an enduring struggle against the challenges of FM. Psychological approaches that facilitate this ongoing adjustment process may prove beneficial in FM treatment and rehabilitation.
纤维肌痛（FM）是一种以疼痛和疲劳为特征的慢性综合征。本研究旨在探讨 FM 患者如何理解疾病体验，并将其融入个人传记中。
从英格兰西北部的一个疼痛管理服务中心招募了 10 名女性参与研究。对每个人的生活故事进行了时间顺序的总结，并确定和比较了情节、语气、意象和隐喻等叙述特征。
研究结果以一个元叙事的形式呈现，纳入了所有 10 个叙述，分为五个阶段：（1）理解 FM：我年轻的时候，根本没有任何问题；（2）发病和诊断：你只是觉得自己一直在抱怨；（3）FM 的侵袭：你被困住了；被困在这个身体里；（4）应对 FM：你试图按照一定的模式做事，它会服从；（5）持续的斗争：我拒绝向它屈服。
该叙述的特点是缺乏动力和解决办法，参与者与 FM 带来的挑战进行着持久的斗争。促进这一持续调整过程的心理方法可能对 FM 的治疗和康复有益。
