Wolfe Joanne, Friebert Sarah, Hilden Joanne
Children's Hospital and Dana-Farber Cancer Institute, Boston, MA 02115, USA.
Pediatr Clin North Am. 2002 Oct;49(5):1043-62. doi: 10.1016/s0031-3955(02)00034-2.
The care of children with advanced cancer is multifaceted. Treatment should focus on continued efforts to control the underlying illness whenever possible. At the same time, children and their families should have access to interdisciplinary care aimed at promoting optimal physical, psychological and spiritual wellbeing. Open and compassionate communication can best facilitate meeting the goals of these children and families. However, there remain significant barriers to achieving optimal care related to lack of formal education, reimbursement issues and the emotional impact of caring for a dying child. Future research efforts should focus on ways to enhance communication, symptom management and quality of life for children with advanced cancer and their families. As efforts to break down barriers and create the evidence base continue, we conclude as follows: this is a most rewarding part of the practice of medicine. A kind word and caring attitude are remembered for decades.
晚期癌症患儿的护理是多方面的。治疗应尽可能持续致力于控制潜在疾病。与此同时，儿童及其家庭应能获得旨在促进最佳身体、心理和精神健康的跨学科护理。开放且富有同情心的沟通最有助于实现这些儿童及其家庭的目标。然而，由于缺乏正规教育、报销问题以及照顾濒死儿童的情感影响，在实现最佳护理方面仍存在重大障碍。未来的研究工作应专注于改善晚期癌症患儿及其家庭的沟通、症状管理和生活质量的方法。随着消除障碍和建立证据基础的努力持续进行，我们得出以下结论：这是医学实践中最有意义的部分。一句友善的话语和关怀的态度会被铭记数十年。
