Gaebler-Spira Deborah, Thornton Lisa S
Northwestern University, Feinberg School of Medicine, Pediatric Rehabilitation Program, Rehabilitation Institute of Chicago, Chicago, IL, USA.
Phys Med Rehabil Clin N Am. 2002 Nov;13(4):891-906. doi: 10.1016/s1047-9651(02)00023-2.
Little injury data exists for children who have disabilities. There is an urgent need to address injury prevention and to improve safety standards for this group. Understanding the epidemiology of injuries will allow clinicians to accurately advise patients and their families on individual risks and counsel them in steps to take to reduce those risks. Safety information must be tailored to consider each child's functional impairments. All children who have disabilities are at risk for maltreatment. Open discussion of this problem is warranted given the immensity of the problem. Identifying parental concerns and supporting parents in the use of respite resources are appropriate. For children who have problems in mobility, falls are the number one concern. Collaboration with reliable vendors and therapists that adhere to standards for safe seating is essential for reducing the risk of wheelchair tips and falls. In addition, therapists should be directed to provide mobility training for activities from safe transfers to street crossing in a community setting. Parents should be counseled to approach their child's injury risk based on the child's cognitive and behavioral level rather than their chronological level. Knowledge of the child's developmental quotient or intelligence quotient will also allow the clinician to accurately formulate an injury prevention plan. Many children will always need supervision for tasks that put them in situations of injury risk (i.e., swimming, street crossing, bathing). Sensorineural deficits such as blindness or deafness create significant alterations in negotiating the environment and an increased risk of injury. Awareness of the special needs for fire risk reduction and street safety are critical in this population. The collection of injury data is critical to define the scope of the problem and to influence changes in policy and the development of technical standards. Educational efforts focused on safety should include pediatricians, rehabilitative therapists, social workers, teachers, parents, and--most importantly--the empowerment of children as they age injury-free into adults. SUGGESTED STRATEGIES: A national injury surveillance system for children who have disabilities should be developed to identify injury risk factors for children with disabilities. Children with disabilities should be monitored as a separate risk group in data collection regarding injuries. Parents should be aware of the cognitive level of their child and its influence on their injury risk. Crash testing on passenger restraints should include crash dummies whose physical characteristics resemble those of children who have disabilities. Families should have an emergency evacuation plan with specific consideration of their disabled child in the event of an emergency. Risk of burns to insensate skin and risks of thermal and friction trauma should be discussed when appropriate. The fire department and the police department should be notified of the presence of a child who has a disability in the home. Parents must be aware of the risk of falls to children who are mobile but cognitively impaired and to those in wheelchairs regardless of cognitive ability. Hospitals must have Child Protective Services teams with specific training in abuse to children with disabilities. Discussion of maltreatment risk should be addressed during routine office visits and appropriate resources should be made available to provide support to families. Educational programs should be developed to alert providers to the risks of abuse of children who have disabilities.
关于残疾儿童的伤害数据很少。迫切需要解决伤害预防问题并提高该群体的安全标准。了解伤害的流行病学将使临床医生能够就个体风险向患者及其家属提供准确建议,并指导他们采取措施降低这些风险。安全信息必须量身定制,以考虑每个孩子的功能障碍。所有残疾儿童都有遭受虐待的风险。鉴于这个问题的严重性,有必要公开讨论这个问题。识别父母的担忧并支持父母使用临时照料资源是恰当的。对于行动有问题的儿童,跌倒则是首要问题。与遵守安全座椅标准的可靠供应商和治疗师合作对于降低轮椅翻倒和跌倒的风险至关重要。此外,治疗师应接受指导,为从安全转移到社区环境中的过马路等活动提供行动能力培训。应该建议父母根据孩子的认知和行为水平而非实际年龄来评估孩子的受伤风险。了解孩子的发育商数或智商也将使临床医生能够准确制定伤害预防计划。许多孩子在从事有受伤风险的任务(如游泳、过马路、洗澡)时总是需要监督。诸如失明或失聪等感觉神经缺陷会在与环境互动时造成重大改变,并增加受伤风险。认识到降低火灾风险和街道安全的特殊需求在这一人群中至关重要。收集伤害数据对于界定问题范围以及影响政策变化和技术标准的制定至关重要。以安全为重点的教育工作应包括儿科医生、康复治疗师、社会工作者、教师、家长,以及——最重要的是——让孩子们在成长过程中免受伤害,成长为成年人。
应建立一个针对残疾儿童的国家伤害监测系统,以识别残疾儿童的伤害风险因素。在收集有关伤害的数据时,残疾儿童应作为一个单独的风险群体进行监测。父母应该了解孩子的认知水平及其对受伤风险的影响。对乘客约束装置的碰撞测试应包括身体特征与残疾儿童相似的碰撞假人。家庭应该制定紧急疏散计划,在紧急情况下特别考虑家中的残疾儿童。应在适当的时候讨论失去知觉的皮肤被烧伤的风险以及热伤和摩擦伤的风险。应将家中有残疾儿童的情况通知消防部门和警察部门。父母必须意识到行动自如但认知受损的儿童以及轮椅上的儿童(无论其认知能力如何)有跌倒的风险。医院必须配备对虐待残疾儿童有专门培训的儿童保护服务团队。应在常规门诊就诊时讨论虐待风险,并应提供适当资源以支持家庭。应制定教育计划,提醒医疗服务提供者注意虐待残疾儿童的风险。