Schwartz C, Rabinovitz S
School of Social Work, Bar Ilan University, Ramat-Gan, Israel.
J Intellect Disabil Res. 2003 Feb;47(Pt 2):75-84. doi: 10.1046/j.1365-2788.2003.00436.x.
Within the literature on quality of life (QoL), life satisfaction (LS) has emerged as a key variable by which to measure perceived well-being, which is referred to as subjective QoL. The LS self-reports of 93 residents with intellectual disability (ID) living in community-based residences were compared with reports about their LS completed by their staff and parents.
The residents were interviewed on their LS by social workers who did not belong to the staff of the interviewee's residence. The instrument used was the Life Satisfaction Scale (LSS). Staff and parents completed the short version of the LSS.
Residents and staff's LS reports were positively correlated. However, significant differences were found between these two groups of informants when the residents were characterized as high functioning, had a low score in challenging behaviour, worked in an integrative employment setting and lived in an apartment. As opposed to staff/resident discrepancies, no differences were found between parents' and residents' LS reports.
If residents cannot to be interviewed about their LS, then the parent is the preferred person to respond on behalf of the resident. The current study highlights the importance of including both objective measures (e.g. functional assessment characteristics) and subjective measures (e.g. LS) in order to get a better understanding of the QoL of people with ID.
在生活质量(QoL)的文献中,生活满意度(LS)已成为衡量感知幸福感的关键变量,即主观生活质量。对93名居住在社区住宅中的智障(ID)居民的生活满意度自我报告与他们的工作人员和父母完成的关于他们生活满意度的报告进行了比较。
由不属于受访者居住机构工作人员的社会工作者就其生活满意度对居民进行访谈。使用的工具是生活满意度量表(LSS)。工作人员和父母完成了LSS的简短版本。
居民和工作人员的生活满意度报告呈正相关。然而,当居民被认定为高功能、挑战性行为得分低、在综合就业环境中工作且居住在公寓时,这两组信息提供者之间存在显著差异。与工作人员/居民的差异不同,父母和居民的生活满意度报告之间没有差异。
如果无法就居民的生活满意度进行访谈,那么父母是代表居民回答的首选人员。当前研究强调了纳入客观测量(如功能评估特征)和主观测量(如生活满意度)以更好地了解智障人士生活质量的重要性。