Uitterhoeve Ruud, Duijnhouwer Ellen, Ambaum Betty, van Achterberg Theo
Department of Medical Oncology, University Medical Center Nijmegen, The Netherlands.
Cancer Nurs. 2003 Feb;26(1):18-27. doi: 10.1097/00002820-200302000-00003.
The purpose of this descriptive exploratory study by the Dutch Oncology Nursing Society was to describe the problem areas in the care of patients who are receiving chemotherapy as perceived by patients and professional caregivers as well as to explore differences between the perceptions of patients and professional caregivers. Three independent samples of 120 patients who are being treated with chemotherapy, 42 chemotherapy prescribing medical specialists, and 68 oncology nurses who are involved in the daily bedside care of the patients undergoing chemotherapy participated in the study. Patients and professional caregivers completed a 69- and a 58-item self-administered questionnaire, respectively. Results show that patients were satisfied with the medical and nursing care they received. Furthermore, results suggest that professional caregivers perceive the experience of patients with chemotherapy differently than patients, eg, patients perceive chemotherapy as reassuring that something is being done; whereas caregivers think that patients experience chemotherapy as something to fear or be anxious or uncertain about. It further seems that professional caregivers are more prone to act upon the medical-technical aspects of the treatment than to act on psychosocial sequelae of the treatment.
荷兰肿瘤护理协会开展的这项描述性探索性研究的目的是,描述患者和专业护理人员所认为的接受化疗患者护理中的问题领域,并探讨患者与专业护理人员认知之间的差异。三个独立样本参与了该研究,分别是120名正在接受化疗的患者、42名开具化疗处方的医学专家以及68名参与化疗患者日常床边护理的肿瘤护士。患者和专业护理人员分别完成了一份69项和一份58项的自填式问卷。结果显示,患者对他们所接受的医疗和护理服务感到满意。此外,结果表明,专业护理人员对患者化疗经历的认知与患者不同,例如,患者认为化疗让人安心,觉得正在采取措施;而护理人员则认为患者经历化疗时会感到恐惧、焦虑或不确定。进一步看来,专业护理人员更倾向于关注治疗的医疗技术方面,而非治疗的心理社会后遗症。