Duff Alistair James Aitken, Wolfe Susan Pamela, Dickson Corrine, Conway Steven Phillip, Brownlee Keith Graham
Regional Paediatric Cystic Fibrosis Unit (RPCFU), Children's Day Hospital, St. James University Hospital, Leeds LS9 7TF, United Kingdom.
J Pediatr Gastroenterol Nutr. 2003 Apr;36(4):443-7. doi: 10.1097/00005176-200304000-00004.
Feeding behavior problems contribute to inadequate dietary intake for many patients with cystic fibrosis (CF). However, to establish effective intervention programs, more needs to be known about the occurrence and distribution of these difficulties. The aims of this study were to establish the prevalence and range of disruptive child behaviors (DCB) in patients with CF and the inappropriate parental responses (IPR) during mealtimes and to compare the results with those of healthy children.
In study A, parents of 108 patients (aged 1-7 years) completed a Behavioural Paediatric Feeding Assessment Scale comprising two domains: DCBs and IPRs during mealtimes. Parents rated the frequency of the behaviors and responses and identified those they considered problematic. In study B, data from the CF group (n = 69, aged 1-12 years) were compared with 69 age- and sex-matched control subjects.
Parents of children with CF aged 5 to 8 years recorded significantly more DCBs than those in all other age ranges. These parents also reported significantly more IPRs than did parents of children aged 9 to 12 years and 13 to 17 years. Parents of children with CF reported significantly more DCBs and IPRs than did those of the control subjects. There were significantly more problematic DCBs and IPRs in the CF group than in the control group for children aged 5 to 8 years and 9 to 12 years but not for those aged 1 to 4 years.
Parents of children with CF report more feeding behavior problems than do those of healthy control subjects. The high prevalence of feeding behavior problems in older children suggests that preventative and reactive interventions must continue throughout childhood and vary according to the child's developmental abilities.
喂养行为问题导致许多囊性纤维化（CF）患者饮食摄入不足。然而，为了制定有效的干预方案，需要更多地了解这些困难的发生情况和分布。本研究的目的是确定CF患者进餐时破坏性行为（DCB）的患病率和范围以及父母不恰当反应（IPR），并将结果与健康儿童进行比较。
在研究A中，108名患者（年龄1至7岁）的父母完成了一份儿童喂养行为评估量表，该量表包括两个领域：进餐时的破坏性行为和父母不恰当反应。父母对行为和反应的频率进行评分，并确定他们认为有问题的行为和反应。在研究B中，将CF组（n = 69，年龄1至12岁）的数据与69名年龄和性别匹配的对照受试者的数据进行比较。
5至8岁CF患儿的父母记录的破坏性行为明显多于所有其他年龄组的父母。这些父母报告的父母不恰当反应也明显多于9至12岁和13至17岁儿童的父母。CF患儿的父母报告的破坏性行为和父母不恰当反应明显多于对照组的父母。在5至8岁和9至12岁的儿童中，CF组的问题破坏性行为和父母不恰当反应明显多于对照组，但1至4岁的儿童则不然。
CF患儿的父母报告的喂养行为问题比健康对照组的父母更多。大龄儿童喂养行为问题的高患病率表明，预防和应对干预措施必须贯穿整个童年，并根据儿童的发育能力而有所不同。
