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让痴呆症患者发声:研究者的机遇与挑战。

Giving voice to persons living with dementia: the researcher's opportunities and challenges.

作者信息

Moore Theresa F, Hollett Jane

机构信息

Aging Program, Sunnybrook & Women's College Health Sciences Centre, Toronto, Ontario, Canada.

出版信息

Nurs Sci Q. 2003 Apr;16(2):163-7. doi: 10.1177/0894318403251793251793.

DOI:10.1177/0894318403251793251793
PMID:12728835
Abstract

Few qualitative studies have examined the experiences of persons living with dementia and little has been written about the opportunities and challenges for the researchers. This article challenges the assumption of dwindling personhood among persons with dementia. Methodological challenges which may be encountered by qualitative researchers are outlined and specific strategies for addressing these challenges are described including: modifying consent/assent procedures, adjusting sample size, facilitating communication, and making the most of the data.

摘要

很少有定性研究考察过痴呆症患者的经历,关于研究人员面临的机遇和挑战的著述也很少。本文对痴呆症患者人格逐渐丧失的假设提出了质疑。概述了定性研究人员可能遇到的方法学挑战,并描述了应对这些挑战的具体策略,包括:修改同意/赞成程序、调整样本量、促进沟通以及充分利用数据。

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