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挪威脑瘫成年人与普通人群的疲劳状况比较

Fatigue in adults with cerebral palsy in Norway compared with the general population.

作者信息

Jahnsen Reidun, Villien Lisbeth, Stanghelle Johan K, Holm Inger

机构信息

Department of Child Neurology, Rikshospitalet HF, University of Oslo, Norway.

出版信息

Dev Med Child Neurol. 2003 May;45(5):296-303. doi: 10.1017/s0012162203000562.

Abstract

Fatigue is commonly reported among adults with cerebral palsy (CP) and in the general population. The aim of this study was to examine the prevalence of perceived fatigue in adults with CP compared with the general Norwegian population. A multidimensional questionnaire, containing among other instruments the Fatigue Questionnaire, was sent to persons with CP aged 18 years or older with no intellectual disabilities documented in their medical records. Results were compared with recently published results of a study of fatigue in the general population in Norway. There were 406 respondents (209 males, 197 females; mean age 34 years, SD 11 years; age range 18 to 72 years). Distribution of the different types of CP coincided with international epidemiological studies on CP. Adults with CP reported significantly more physical, but not more mental fatigue, than the general population. The strongest predictors associated with fatigue were bodily pain, deterioration of functional skills, limitations in emotional and physical role function, and low life satisfaction. Fatigue was not significantly associated with type of CP but was most prevalent in persons with a self-reported moderate grade of CP. Results of the present study indicate that physical fatigue is a pronounced problem in adults with CP, which has an impact on the preservation of functional skills and life satisfaction. Fatigue and factors related to fatigue should be addressed specifically in follow-up programmes for persons with CP.

摘要

疲劳在脑瘫(CP)成人患者以及普通人群中都很常见。本研究的目的是调查与挪威普通人群相比,脑瘫成人患者中感知疲劳的患病率。一份包含疲劳问卷等多种工具的多维问卷被发送给年龄在18岁及以上、病历中无智力残疾记录的脑瘫患者。研究结果与挪威普通人群疲劳研究最近公布的结果进行了比较。共有406名受访者(209名男性,197名女性;平均年龄34岁,标准差11岁;年龄范围18至72岁)。不同类型脑瘫的分布与国际上关于脑瘫的流行病学研究一致。与普通人群相比,脑瘫成人患者报告的身体疲劳明显更多,但精神疲劳并不更多。与疲劳相关的最强预测因素是身体疼痛、功能技能恶化、情感和身体角色功能受限以及生活满意度低。疲劳与脑瘫类型没有显著关联,但在自我报告为中度脑瘫的患者中最为普遍。本研究结果表明,身体疲劳是脑瘫成人患者中的一个突出问题,这对功能技能的保持和生活满意度有影响。在脑瘫患者的后续治疗方案中,应特别关注疲劳及与疲劳相关的因素。

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