Minnock P, FitzGerald O, Bresnihan B
Rheumatology Rehabilitation, Our Lady's Hospice, Harold's Cross, Dublin 6, Ireland.
Rheumatology (Oxford). 2003 Aug;42(8):995-1000. doi: 10.1093/rheumatology/keg281. Epub 2003 Apr 16.
The aim of this study was to characterize perceptions of health and well-being in women with established rheumatoid arthritis (RA).
Women aged between 40 and 60 yr with RA for more than 3 yr, and who were receiving stable doses of anti-rheumatic drug therapy, were selected for study. The Arthritis Impact Measurement Scales 2 (AIMS2) was employed to quantify current health status impairments, the impairments that were attributed to RA, perceptions of current health status compared with other women of the same age, and perceptions of future health status.
Fifty-eight patients were studied. The full range of 12 AIMS2 dimensions was used when quantifying impairments in health status. The dominant impairment was pain. Moreover, 88% of patients attributed current pain to RA. Fifty-two per cent perceived their health status to be fair, poor or very poor compared with other women of the same age. Twenty-five per cent expected poor future health status, compared with 10% who perceived poor current health status. Only one patient (2%) expected excellent future health status.
In this study, a large majority of women perceived impairments of health status that they attributed to RA. Pain was perceived as the predominant impairment. Deterioration in health status was anticipated by many. The inclusion of patient perceptions of health status and disease impact as outcome measures in both cross-sectional and longitudinal clinical research protocols merits further study.
本研究旨在描述确诊为类风湿关节炎(RA)的女性对健康和幸福感的认知。
选取年龄在40至60岁之间、患RA超过3年且正在接受稳定剂量抗风湿药物治疗的女性进行研究。采用关节炎影响测量量表2(AIMS2)来量化当前健康状况损害、归因于RA的损害、与同龄其他女性相比对当前健康状况的认知以及对未来健康状况的认知。
共研究了58例患者。在量化健康状况损害时使用了AIMS2的全部12个维度。主要损害是疼痛。此外,88%的患者将当前疼痛归因于RA。与同龄其他女性相比,52%的患者认为自己的健康状况为一般、较差或非常差。25%的患者预计未来健康状况较差,而认为当前健康状况较差的患者为10%。只有1例患者(2%)预计未来健康状况极佳。
在本研究中,绝大多数女性察觉到她们认为归因于RA的健康状况损害。疼痛被视为主要损害。许多人预计健康状况会恶化。将患者对健康状况和疾病影响的认知作为横断面和纵向临床研究方案的结果指标纳入,值得进一步研究。