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在一家多发性硬化症专科诊断诊所提供护理服务。

Nursing at a specialist diagnostic clinic for multiple sclerosis.

作者信息

Porter Bernadette, Keenan Elizabeth

机构信息

The National Hospital for Neurology, University College London Hospitals, London.

出版信息

Br J Nurs. 2003;12(11):650, 652-6. doi: 10.12968/bjon.2003.12.11.11314.

Abstract

People with multiple sclerosis (MS) need support, information, education and guidance in order to adapt effectively to the impact of the disease (Sheridan, 1997). The care received at the time of diagnosis is central to this adaptation process as the information given and received may impact on the person with MS for the rest of his/her life. In order to achieve effective coping strategies, the person with MS needs to develop a collaborative relationship with the team of healthcare professionals. At the National Hospital for Neurology and Neurosurgery (NHNN), University College London Hospital (UCLH), the MS team believes that the foundations of this relationship should be cemented at the diagnostic stage. This article describes a diagnostic model that facilitates accurate timely diagnosis of MS and the role of the MS nurse in providing expert clinical assessment, guidance, support and education in order to help the patient adjust to the disease.

摘要

患有多发性硬化症(MS)的人需要支持、信息、教育和指导,以便有效地适应该疾病的影响(谢里丹,1997年)。诊断时所接受的护理对于这一适应过程至关重要,因为所给予和获取的信息可能会对患有MS的人的余生产生影响。为了实现有效的应对策略,患有MS的人需要与医疗专业人员团队建立合作关系。在伦敦大学学院医院(UCLH)的国立神经病学和神经外科医院(NHNN),MS团队认为这种关系的基础应在诊断阶段奠定。本文描述了一种有助于准确及时诊断MS的诊断模型,以及MS护士在提供专业临床评估、指导、支持和教育以帮助患者适应疾病方面的作用。

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