Hasegawa Mieko
Japan Rheumatism Friendship Association, Tokyo, Japan.
J Rheumatol Suppl. 2003 Aug;67:48-9.
The Japan Rheumatism Friendship Association (JRFA) was founded in 1960 and today has a membership of about 23,000, with 47 chapters across the country. We periodically conduct a survey of our membership for the Rheumatism White Paper, which we have been publishing since the JRFA was formed. The entire membership is surveyed every 5 years; surveys give an accurate picture of the current state of the disease and reflect the fundamental activities of the JRFA; they shed light on progress in developing effective measures against arthritis, and give people a better understanding of rheumatism. The survey is also a unique resource, for it canvasses a wide cross section of people with arthritis. In Japan, the Rheumatism White Paper is widely regarded as an authoritative source. The aims of the JRFA are to promote the accurate knowledge of RA to improve mutual friendship, and to work for the establishment and development of policies against RA disease. In this way, the JRFA seeks to advance the welfare of RA patients. In this article the activities of the JRFA are described.
日本风湿病友好协会（JRFA）成立于1960年，目前拥有约23000名会员，在全国设有47个分会。我们定期对会员进行调查，以撰写自协会成立以来一直发布的《风湿病白皮书》。每5年对全体会员进行一次调查；这些调查能准确呈现该疾病的当前状况，反映JRFA的基本活动；它们揭示了在制定有效防治关节炎措施方面取得的进展，并让人们更好地了解风湿病。该调查也是一种独特的资源，因为它对广泛的关节炎患者群体进行了调查。在日本，《风湿病白皮书》被广泛视为权威资料来源。JRFA的目标是促进对类风湿关节炎的准确认知以增进相互友谊，并致力于制定和发展针对类风湿关节炎疾病的政策。通过这种方式，JRFA致力于提升类风湿关节炎患者的福祉。本文将介绍JRFA的活动。
