Dhanda Rahul K, Reilly Philip R
Bioethics Program, Interleukin Genetics, 135 Beaver St., Waltham, MA 02452, USA.
Pediatr Ann. 2003 Aug;32(8):540-6. doi: 10.3928/0090-4481-20030801-11.
Newborn screening raises many ethical and legal concerns, from the bioethics issues commonly faced with genetic testing and the practice of informed consent to the classical medical ethics questions that surround resource allocation. This mandatory, state-based healthcare intervention has not met with the resistance that one might have anticipated, yet it is still not integrated into society to its full potential. While there is room for newborn screening programs to improve on the technical, ethical, and legal fronts, this should not discourage policymakers, physicians, scientists, and other stak-holders from learning from the successful aspects of its implementation and applying these lessons to other, related technologies.
新生儿筛查引发了诸多伦理和法律问题,从基因检测和知情同意实践中常见的生物伦理问题到围绕资源分配的经典医学伦理问题。这种基于州的强制性医疗干预并未遭遇人们可能预期的阻力,但它仍未充分融入社会。虽然新生儿筛查项目在技术、伦理和法律方面仍有改进空间,但这不应阻碍政策制定者、医生、科学家和其他利益相关者借鉴其成功实施的经验,并将这些经验应用于其他相关技术。