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选择与声音:感染艾滋病毒者在瑞安·怀特法案第二章消费者咨询委员会中的参与

Choices and voices: participation of people with HIV on Ryan White Title II Consumer Advisory Boards.

作者信息

Poindexter Cynthia Cannon, Lane Terry Saunders

机构信息

Graduate School of Social Service, Fordham University, North Hall, Room 312, Neperan Road, Tarrytown, NY 10591, USA.

出版信息

Health Soc Work. 2003 Aug;28(3):196-205. doi: 10.1093/hsw/28.3.196.

DOI:10.1093/hsw/28.3.196
PMID:12971283
Abstract

This article presents an assessment of the functioning and training needs of consumer advisory boards in Massachusetts (CABs) who advise the Massachusetts agency and the consortia funded through Title II of the Ryan White Comprehensive AIDS Resources Emergency Act. The study found that the stage agency and the CABs valued the role of consumers in policy making, but the mechanisms for translating this goal into reality were not always clear or available. The CABs wanted more opportunities to interact with HIV/AIDS Bureau staff and with one another. The CAB members expressed need for ongoing training and technical assistance for themselves and for consortia staff. This project was an example of action research, for the purpose of change and mobilization.

摘要

本文对马萨诸塞州消费者咨询委员会(CABs)的运作情况及培训需求进行了评估,这些委员会为马萨诸塞州机构以及通过《瑞安·怀特艾滋病综合资源紧急法案》第二章获得资助的财团提供建议。研究发现,州级机构和消费者咨询委员会重视消费者在政策制定中的作用,但将这一目标转化为实际行动的机制并不总是清晰或可行。消费者咨询委员会希望有更多机会与艾滋病病毒/艾滋病局工作人员以及相互之间进行互动。咨询委员会成员表示,他们自身以及财团工作人员都需要持续的培训和技术援助。该项目是行动研究的一个范例,旨在实现变革与动员。

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引用本文的文献

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Community-academic partnerships in HIV-related research: a systematic literature review of theory and practice.艾滋病相关研究中的社区-学术伙伴关系:理论与实践的系统文献综述
J Int AIDS Soc. 2015 Jan 27;18(1):19354. doi: 10.7448/IAS.18.1.19354. eCollection 2015.