Raynes N V
Med Care. 1976 May;14(5 Suppl):53-9. doi: 10.1097/00005650-197605001-00010.
The importance of information for evaluating the health status, needs, and progress of the mentally and physically handicapped has been consistently argued. However, the varied nature of handicapping conditions, often aggravated by the presence of multiple conditions, the extended periods of treatment, the diverse professional groups involved, and the multiple uses and users of data pose difficult problems for uniform data collection. For these heterogenously disabled populations whose conditions are generally not fully remediable, it is especially important to have 1) data on functional ability, both current and potential, and 2) information characterizing the nature of the care environment in terms of its social and educational stimulus, barriers to functional development, and availability of supportive services in the community. In both areas, considerable work has been done to develop measurement instruments for the institutional and noninstitutional handicapped.
信息对于评估智力和身体残疾者的健康状况、需求及进展的重要性一直存在争议。然而，致残状况的多样性，往往因多种状况并存、治疗周期延长、涉及的专业群体多样以及数据的多种用途和使用者而加剧，这给统一数据收集带来了难题。对于这些状况通常无法完全治愈的异质性残疾人群体而言，拥有以下两点尤为重要：1）关于当前和潜在功能能力的数据；2）从社会和教育刺激、功能发展障碍以及社区支持服务的可获得性等方面描述护理环境性质的信息。在这两个领域，已经开展了大量工作来开发针对机构内和非机构内残疾者的测量工具。
