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青少年镰状细胞病的社会心理影响

Psychosocial effects of sickle cell disease among adolescents.

作者信息

Adedoyin M A

机构信息

Department of Child Health, University of Ilorin, Nigeria.

出版信息

East Afr Med J. 1992 Jul;69(7):370-2.

PMID:1396191
Abstract

One hundred and thirty eight adolescents with Sickle Cell Disease responded to a semi-structured questionnaire with respect to their attitudes to Sickle Cell Disease. Bone pain was the most frequent reason for admission into the hospital. Those who had more than three hospital admission for either bone pain, blood transfusion or infection saw themselves as unhappy people. A sense of shame in public, inability to play games of their choice, fear of dying young, and fear of not achieving their goals in life were reasons given for unhappiness. Majority of them appreciated that their parents were concerned about their plight. The need for further research in the area of the attitudes of sicklers is discussed.

摘要

138名镰状细胞病青少年就他们对镰状细胞病的态度回答了一份半结构化问卷。骨痛是入院最常见的原因。因骨痛、输血或感染住院超过三次的人认为自己不快乐。在公共场合感到羞耻、无法玩自己选择的游戏、害怕英年早逝以及害怕无法实现人生目标是他们不快乐的原因。他们中的大多数人意识到父母关心他们的困境。文中讨论了在镰状细胞病患者态度方面进行进一步研究的必要性。

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