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与脊柱裂共存。

Living with spina bifida.

作者信息

Fosdal M O

机构信息

University of Wisconsin Hospitals, Madison.

出版信息

J Neurosci Nurs. 1992 Oct;24(5):286-9.

PMID:1402154
Abstract

Health care workers are normally the ones who surround family members as they first begin to cope with spina bifida. It is important to assess family stressors and work with family members to formulate a care plan which assists them to cope with this child. Helping these children grow in society, within our schools and in their jobs, shows that continual observations and interventions may be necessary to maintain optimal growth. I have had the opportunity here to share personal experiences. I can truly say that I look forward to the opportunities ahead and realize that success lies not in my job, but within me.

摘要

医护人员通常是在家庭成员首次开始应对脊柱裂问题时陪伴在他们身边的人。评估家庭压力源并与家庭成员合作制定护理计划,以帮助他们照顾这个孩子,这很重要。帮助这些孩子在社会中、在我们的学校里以及在工作岗位上成长,表明可能需要持续的观察和干预来维持最佳成长状态。我在这里有机会分享个人经历。我可以真诚地说,我期待着未来的机会,并意识到成功不在于我的工作,而在于我自身。

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