在极权国家筛查苯丙酮尿症。
Screening for phenylketonuria in a totalitarian state.
作者信息
Kalaydjieva L, Kremensky I
机构信息
Laboratory of Molecular Pathology, Institute of Obstetrics, Sofia, Bulgaria.
出版信息
J Med Genet. 1992 Sep;29(9):656-8. doi: 10.1136/jmg.29.9.656.
Living under a totalitarian regime has many effects on the structure, way of thinking, and relations in a society. However, it is the impact on neonatal genetic screening that we discuss in this paper. Genetic screening functions at the interface between health services and society at large. Being involved for over a decade in setting up the Bulgarian PKU screening programme, we have had to deal with ways and attitudes which may be difficult for the western mind to grasp. Yet comprehension is very much needed in the new world we are trying to create.
生活在极权主义政权之下会对社会的结构、思维方式及人际关系产生诸多影响。然而，本文所讨论的是其对新生儿基因筛查的影响。基因筛查在医疗卫生服务与整个社会之间发挥作用。在参与保加利亚苯丙酮尿症筛查项目的设立工作长达十多年的时间里，我们不得不应对一些西方思维可能难以理解的方式和态度。然而，在我们试图创建的新世界中，理解这些是非常必要的。
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