Rivara J B, Fay G C, Jaffe K M, Polissar N L, Shurtleff H A, Martin K M
Department of Rehabilitation Medicine, School of Social Work, University of Washington, Seattle.
Arch Phys Med Rehabil. 1992 Oct;73(10):899-910.
This study examined changes in family functioning and predictors of family outcome during the year following traumatic brain injury (TBI). The families of 94 children with TBI (mild = 50, moderate = 25, severe = 19), ages six to 15, were consecutively enrolled from two regional medical centers. Family interview ratings and standard measures of family and child functioning were completed three weeks after injury (measuring preinjury status), as well as three and 12 months. Two-thirds of families had moderate to good preinjury global functioning and coping resources, but more than half exhibited high levels of stress and at-risk family relationships. No significant preinjury differences by injury severity were seen on any measure. Whereas few changes in family functioning were observed over the year in the mild or moderate groups, greater deterioration occurred in the severe group. From one third to one half noted moderate to severe strain in 13 problem areas often seen in individuals with TBI. Preinjury family global functioning, however, was more strongly predictive of 12-month family functioning (R2 = .38 to .68) than was injury severity (R2 = .05 to .09). In four out of five outcome areas assessed at 12 months, preinjury status in each area was the strongest single predictor. Preinjury coping was the best predictor of stress. Families at risk can be identified and need ongoing support for optimal functioning.
本研究调查了创伤性脑损伤(TBI)后一年内家庭功能的变化以及家庭结局的预测因素。从两个地区医疗中心连续招募了94名6至15岁患有TBI的儿童家庭(轻度=50例,中度=25例,重度=19例)。在受伤后三周(测量伤前状况)以及三个月和十二个月时完成了家庭访谈评分以及家庭和儿童功能的标准测量。三分之二的家庭伤前整体功能和应对资源处于中等至良好水平,但超过一半的家庭表现出高度压力和有风险的家庭关系。在任何测量指标上,均未发现受伤严重程度在伤前存在显著差异。轻度或中度组在这一年中家庭功能几乎没有变化,而重度组则出现了更大程度的恶化。三分之一到二分之一的家庭在TBI患者常见的13个问题领域中存在中度至重度压力。然而,伤前家庭整体功能比受伤严重程度更能强烈预测12个月时的家庭功能(R2 = 0.38至0.68),而受伤严重程度的预测力为(R2 = 0.05至0.09)。在12个月时评估的五个结局领域中的四个领域,每个领域的伤前状况都是最强的单一预测因素。伤前应对方式是压力的最佳预测因素。可以识别出有风险的家庭,并且这些家庭需要持续的支持以实现最佳功能。