McDonald R, Surtees R, Wirz S
Institute of Child Health, University College London, London, UK.
Int J Rehabil Res. 2003 Sep;26(3):235-43. doi: 10.1097/00004356-200309000-00012.
Children with cerebral palsy are often prescribed adaptive seating systems for use in their wheelchairs for the purposes of improving posture and to help prevent the development of long-term deformity. However, clinical experience indicates that parents and the therapists who advocate the use of these systems do not always agree about the wheelchairs. This study discusses the development of questionnaires for both parents and therapists to measure differences in their opinions about the wheelchairs. The questions were developed through clinical experience, validation was through interviews to discuss topics important to the participants, and repeated application of the questionnaire ensured consistency. The reliability of the questions appears satisfactory and the interview responses demonstrate that the questions selected are important to both groups of stakeholders. However, it was found that parental concerns over their children's seating systems concentrated on functional and day-to-day management issues, whereas therapist concerns focused on technical issues and postural management. Both groups of stakeholders agreed that the questionnaires would be a useful precursor to attending a seating clinic appointment, as it could aid communication between the parent and provider and improve the efficiency and satisfaction of such an appointment. It appears the questionnaire has potential as an outcome measurement tool.
患有脑瘫的儿童通常会被配备适应性座椅系统，用于他们的轮椅上，目的是改善姿势并帮助预防长期畸形的发展。然而，临床经验表明，提倡使用这些系统的家长和治疗师在轮椅问题上并不总是意见一致。本研究讨论了为家长和治疗师设计问卷的过程，以衡量他们对轮椅看法的差异。这些问题是通过临床经验得出的，通过访谈进行验证，讨论对参与者重要的话题，并且问卷的反复应用确保了一致性。问题的可靠性看起来令人满意，访谈回复表明所选择的问题对两组利益相关者都很重要。然而，发现家长对孩子座椅系统的担忧集中在功能和日常管理问题上，而治疗师的担忧则集中在技术问题和姿势管理上。两组利益相关者都认为，问卷将是参加座椅诊所预约的有用前奏，因为它可以帮助家长和提供者之间的沟通，并提高此类预约的效率和满意度。看来该问卷有潜力作为一种结果测量工具。
