Meulenberg F
Erasmus Medisch Centrum, afd. Filosofie, Medische Ethiek en Geschiedenis, Rotterdam, Oude Ilaven 10-12, 4301 CK Zierikzee.
Ned Tijdschr Geneeskd. 2003 Sep 6;147(36):1752-5.
Two journalists wrote a book on HPU (haemopyrrol-lactamuria), a hitherto unknown metabolic disease that was alleged to cause a whole range of complaints. The book is based on the ideas of a biochemist who is also the director of a commercial organisation that offers a diagnostic test as well as a therapy (nutrition supplement) for HPU. The release of the book was accompanied by a press release that provoked various publications in both biomedical journals and the lay press. In response to these reports, the director sometimes registered a complaint with the Dutch Council for Journalism, but on other occasions he did not. The content of this book is in no way based on scientific research. In retrospect, it is obvious that the authors, the biochemist and the publishing company have joint commercial ties. All professional standards of scientific research and journalistic decency are thus being violated. In this way, they are doing harm to the independence and integrity of researchers and journalists in the public image. All the activities of the press seem to have been an essential part of a deliberate marketing strategy for the introduction of a non-disease.
两名记者写了一本关于HPU(血吡咯-内酰胺尿症)的书,这是一种此前不为人知的代谢疾病,据称会引发一系列不适症状。这本书基于一位生物化学家的观点,而这位生物化学家也是一家商业机构的负责人,该机构提供针对HPU的诊断测试以及治疗方法(营养补充剂)。这本书发布时还附带了一篇新闻稿,引发了生物医学期刊和大众媒体的各种报道。针对这些报道,这位负责人有时会向荷兰新闻委员会投诉,但有时则不会。这本书的内容完全没有基于科学研究。事后看来,很明显作者、这位生物化学家和出版公司存在共同的商业关联。因此,所有科学研究和新闻操守的专业标准都遭到了违反。通过这种方式,他们损害了研究人员和记者在公众形象中的独立性和正直性。媒体的所有活动似乎都是引入一种非疾病的蓄意营销策略的重要组成部分。