van Berkel D, van der Weele C
Faculty of Social Sciences, Utrecht University, Heidelberglaan 2, 3584 CS Utrecht, Netherlands.
Patient Educ Couns. 1999 Jun;37(2):153-63. doi: 10.1016/s0738-3991(98)00137-2.
This paper consists of two parts. In the first part, we report the results of an empirical study on Dutch women's decisions about prenatal diagnosis. We were interested in the norms these women used as guidance. One clear norm was found that was shared by everyone: everybody should decide for herself. Despite this clear norm, almost all women expressed difficulty with the choice, often regretted the fact that they had to make it and sometimes even expressed disgust about having to choose. These findings indicate that the choice is often experienced as a burden, which we think should be taken more seriously. In the second part of the paper, we present a way to do so. The core of our proposal is to pay more attention in counseling to the moral character of choices about prenatal diagnosis. We discuss difficulties and possibilities in that direction.
本文由两部分组成。在第一部分中，我们报告了一项关于荷兰女性产前诊断决策的实证研究结果。我们关注这些女性用作指导的规范。发现了一个所有人都认同的明确规范：每个人都应该自己做决定。尽管有这个明确的规范，但几乎所有女性都表示在做选择时存在困难，常常对不得不做这个选择感到遗憾，有时甚至对不得不做选择表示反感。这些发现表明，这个选择常常被体验为一种负担，我们认为这一点应该得到更认真的对待。在本文的第二部分，我们提出了一种这样做的方法。我们提议的核心是在咨询中更多地关注产前诊断选择的道德性质。我们讨论了在那个方向上的困难和可能性。
