Kessler-Berther Gisela
SBK Bildungszentrum, Dienerstrasse 59, CH-8004 Zürich.
Pflege. 2003 Aug;16(4):184-91. doi: 10.1024/1012-5302.16.4.184.
Chronic pain, like that inflicted by fibromyalgia, is not much known, unpredictable and can emerge everywhere in the body. Yet 2 to 4% of the population suffer from this disease, of which 73 to 88% are women. In fact fibromyalgia is more wide spread than the more known rheumatoid arthritis. This research work presents the experience of women in their struggle against this incurable disease and the progress made in the fight against it. The Chronic Illness Trajectory by Corbin and Strauss (1992) is used as a theoretical framework. Six women, over fifty years of age and suffering from fibromyalgia for over ten years, were interviewed. The interviews were audiotaped, transcribed verbatim and analysed using the grounded theory methodology. The instability during disease development, referred to in this paper as "up and down", is an important phenomenon. Along with the pain and "defencelessness" goes the feeling of "not being taken seriously". Results have proven that an interdisciplinary approach is the best way to help those that cope with fibromyalgia.
慢性疼痛，比如纤维肌痛造成的疼痛，鲜为人知、难以预测，且可能出现在身体的任何部位。然而，2%到4%的人口患有这种疾病，其中73%到88%是女性。事实上，纤维肌痛比更为人熟知的类风湿性关节炎更为普遍。这项研究工作展示了女性对抗这种不治之症的经历以及在与之斗争中取得的进展。科尔宾和施特劳斯（1992年）提出的慢性病轨迹被用作理论框架。对六名年龄超过五十岁、患有纤维肌痛超过十年的女性进行了访谈。访谈进行了录音，逐字转录，并采用扎根理论方法进行分析。疾病发展过程中的不稳定性，本文称之为“起伏”，是一个重要现象。伴随着疼痛和“无助感”的是“不被重视”的感觉。结果证明，跨学科方法是帮助应对纤维肌痛患者的最佳方式。
