Macpherson Catriona, Cooke Cathy
Children and Families Service, Fife Palliative Care Service, Cedar House, Whyteman's Brae, Kirkcaldy, KY1 2LF, UK.
Int J Palliat Nurs. 2003 Sep;9(9):397-403. doi: 10.12968/ijpn.2003.9.9.11768.
A palliative care counsellor developed a workbook for use by children aged 5 to 14 years visiting a loved one in a hospice. This article reports the findings of a small qualitative pilot study exploring how children used the workbook, their views on it and the views of their families and hospice staff. The seven children in the study all enjoyed having the workbook. It provided opportunities for them to interact and build relationships with the staff and to become more involved in their visits to the hospice. Nurses and staff thought the workbook had the potential to help nurses and parents respond to questions or to stimulate discussion. Children used the workbook in different ways, highlighting the need for a flexible approach. It is essential when using such a tool that individual and family needs are respected. The study also raised issues regarding the need for training and emotional support for staff.
一名姑息治疗顾问编写了一本工作手册，供5至14岁前往临终关怀机构探望亲人的儿童使用。本文报告了一项小型定性试点研究的结果，该研究探讨了儿童如何使用这本工作手册、他们对它的看法以及他们的家人和临终关怀机构工作人员的看法。该研究中的七个孩子都喜欢有这本工作手册。它为他们提供了与工作人员互动和建立关系的机会，并使他们更积极地参与到对临终关怀机构的探访中。护士和工作人员认为这本工作手册有可能帮助护士和家长回答问题或激发讨论。孩子们以不同的方式使用这本工作手册，这凸显了采用灵活方法的必要性。在使用这样一种工具时，尊重个人和家庭需求至关重要。该研究还提出了有关工作人员培训和情感支持需求的问题。
