Kriegel W, Ropers G, Sangha O, Konietzny G
St. Willibrord-Spital, Emmrich-Rees.
Z Rheumatol. 1992;51 Suppl 1:7-13.
In a study initiated by the German League against Rheumatism, 433 young patients with rheumatic disorders (mean age 27 years, disease duration 7.5 years, 60% female, 40% male) were questioned in 1989 for the first time to ascertain disease-related problems encountered at school or during professional training. Their self-reported diagnoses were 68.2% chronic arthritis and 23.6% Ankylosing spondylitis (definite or probable diagnosis). From 181 patients who had been affected at school age, 84.5% reported the following main problems: absence related to illness, exclusion from excursions and school-related activities. Nevertheless, a majority of the patients (60.5%) reached a qualified graduation. 25.3% of the study sample was still attending school, 50.3% were employed, 8.6% were unemployed, and 4.5% had been retired early. Only 37.7% of the Arthritis patients and 22.3% of the Spondylitis patients had sought advice and help from the labour exchange services; 26.9% of the arthritis patients and 21.9% of the Spondylitis patients assessed this advice to be helpful. Regarding vocational guidance, the patients main criticism was a lack of knowledge about rheumatic disorders. There is a demand for an adjustment of the individual physical abilities and the requirements of the respective jobs, and continuous supervision by a rheumatologist is necessary.
在德国抗风湿联盟发起的一项研究中,1989年首次对433名患有风湿性疾病的年轻患者(平均年龄27岁,病程7.5年,60%为女性,40%为男性)进行了询问,以确定在学校或职业培训期间遇到的与疾病相关的问题。他们自我报告的诊断结果为68.2%为慢性关节炎,23.6%为强直性脊柱炎(确诊或疑似诊断)。在181名学龄期受影响的患者中,84.5%报告了以下主要问题:因病缺勤、被排除在郊游和与学校相关的活动之外。然而,大多数患者(60.5%)获得了合格的毕业成绩。研究样本中25.3%仍在上学,50.3%已就业,8.6%失业,4.5%提前退休。只有37.7%的关节炎患者和22.3%的脊柱炎患者向劳动力交流服务机构寻求过建议和帮助;26.9%的关节炎患者和21.9%的脊柱炎患者认为这些建议有帮助。关于职业指导,患者主要的批评是缺乏对风湿性疾病的了解。需要根据个人身体能力和各自工作的要求进行调整,并且有必要由风湿病专家进行持续监督。