Markovitz Barry P, Goodman Kenneth W
Washington University School Medicine, USA.
AMIA Annu Symp Proc. 2003;2003:926.
We reported at AMIA 1999 on the apparent lack of privacy protection for the subjects of case reports at 32 websites. It has been clear for some time that print journal editors and Institutional Review Boards require informed consent from patients or their surrogates if they can be potentially identified in publications. We found in 1999 that this level of confidentiality protection was not being applied to case reports on the Internet. This report is a follow up evaluation of those and 26 other websites with case reports to see if confidentiality protection practices have improved.
我们在1999年美国医学信息学会年会上报告了32个网站上病例报告的受试者明显缺乏隐私保护的情况。一段时间以来，很明显，如果患者或其代理人可能在出版物中被识别，印刷期刊编辑和机构审查委员会需要获得他们的知情同意。我们在1999年发现，这种保密保护措施并未应用于互联网上的病例报告。本报告是对那些网站以及另外26个有病例报告的网站的后续评估，以查看保密保护措施是否有所改进。
