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关爱囊性纤维化患儿:临床与学校协作模式

Caring for children with cystic fibrosis: a collaborative clinical and school approach.

作者信息

Strawhacker MaryAnn Tapper, Wellendorf Joyce

机构信息

Heartland Area Education Agency, Johnston, IA, USA.

出版信息

J Sch Nurs. 2004 Feb;20(1):5-15. doi: 10.1177/10598405040200010301.

Abstract

Earlier diagnosis and more effective treatments have improved both morbidity and mortality associated with cystic fibrosis, making regular school attendance a reality. School nurses have a unique opportunity to assist students with cystic fibrosis successfully manage their disease. Medical treatment for cystic fibrosis can be complex, leaving students and families in need of health consultation and support. The clinic and school nurse each brings a unique perspective to cystic fibrosis care management. Working to understanding perspectives across settings and looking for ways to collaborate through mutual planning and goal setting is an ideal way to support families and promote achievement of optimal health status for students.

摘要

早期诊断和更有效的治疗改善了与囊性纤维化相关的发病率和死亡率,使正常上学成为现实。学校护士有独特的机会协助患有囊性纤维化的学生成功管理他们的疾病。囊性纤维化的医学治疗可能很复杂,这使得学生和家庭需要健康咨询和支持。诊所护士和学校护士在囊性纤维化护理管理方面各有独特的视角。努力理解不同环境下的视角,并通过共同规划和设定目标寻找合作方式,是支持家庭并促进学生实现最佳健康状况的理想方式。

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