Macias Michelle M, Saylor Conway F, Rowe Brandy P, Bell Nancy L
Department of Pediatrics, Medical University of South Carolina, Charleston 29425, USA.
Psychol Rep. 2003 Dec;93(3 Pt 2):1223-32. doi: 10.2466/pr0.2003.93.3f.1223.
This study examined whether ages of child and parent were risk factors for general parenting stress and disability-specific stress in families of children with spina bifida. Parents of 64 children with spina bifida completed the Parenting Stress Index-Short Form, Parents of Children with Disabilities Inventory, and measures of family support and resources. Scores of families with children under 6 years (preschool) versus 6- to 12-yr.-old children (school age) were compared, as were scores of mothers above or below Age 35. Parents of school-aged children reported significantly higher stress on the Concerns for the Child domain of the Parents of Children with Disabilities Inventory. Mothers over 35 tended to report higher stress in the Concerns for the Child and Medical/Legal Concerns domains of the Parents of Children with Disabilities Inventory. No associations with medical severity, socioeconomic status, family resources, or family support were detected. As the children age and disability-related differences become more apparent, the same level of functioning and severity of disability may be associated with additional parenting stress. Older mothers and those with school-age children may need more resources than current social support systems typically provide.
本研究调查了儿童和父母的年龄是否是脊柱裂患儿家庭中一般育儿压力和特定残疾压力的风险因素。64名脊柱裂患儿的父母完成了《育儿压力指数简表》《残疾儿童父母量表》以及家庭支持和资源测量。比较了6岁以下(学龄前)儿童家庭与6至12岁(学龄)儿童家庭的得分,以及35岁以上和以下母亲的得分。学龄儿童的父母在《残疾儿童父母量表》的“对孩子的担忧”领域报告的压力显著更高。35岁以上的母亲在《残疾儿童父母量表》的“对孩子的担忧”和“医疗/法律担忧”领域往往报告更高的压力。未发现与医疗严重程度、社会经济地位、家庭资源或家庭支持存在关联。随着孩子年龄增长且与残疾相关的差异变得更加明显,相同的功能水平和残疾严重程度可能会带来额外的育儿压力。年龄较大的母亲和有学龄儿童的母亲可能需要比当前社会支持系统通常提供的更多资源。