Suppr超能文献

家庭儿科学:家庭问题特别工作组报告

Family pediatrics: report of the Task Force on the Family.

作者信息

Schor Edward L

出版信息

Pediatrics. 2003 Jun;111(6 Pt 2):1541-71.

Abstract

WHY A TASK FORCE ON THE FAMILY? The practice of pediatrics is unique among medical specialties in many ways, among which is the nearly certain presence of a parent when health care services are provided for the patient. Regardless of whether parents or other family members are physically present, their influence is pervasive. Families are the most central and enduring influence in children's lives. Parents are also central in pediatric care. The health and well-being of children are inextricably linked to their parents' physical, emotional and social health, social circumstances, and child-rearing practices. The rising incidence of behavior problems among children attests to some families' inability to cope with the increasing stresses they are experiencing and their need for assistance. When a family's distress finds its voice in a child's symptoms, pediatricians are often parents' first source for help. There is enormous diversity among families-diversity in the composition of families, in their ethnic and racial heritage, in their religious and spiritual orientation, in how they communicate, in the time they spend together, in their commitment to individual family members, in their connections to their community, in their experiences, and in their ability to adapt to stress. Within families, individuals are different from one another as well. Pediatricians are especially sensitive to differences among children-in their temperaments and personalities, in their innate and learned abilities, and in how they view themselves and respond to the world around them. It is remarkable and a testament to the effort of parents and to the resilience of children that most families function well and most children succeed in life. Family life in the United States has been subjected to extensive scrutiny and frequent commentary, yet even when those activities have been informed by research, they tend to be influenced by personal experience within families and by individual and cultural beliefs about how society and family life ought to be. The process of formulating recommendations for pediatric practice, public policy, professional education, and research requires reaching consensus on some core values and principles about family life and family functioning as they affect children, knowing that some philosophic disagreements will remain unresolved. The growing multicultural character of the country will likely heighten awareness of our diversity. Many characteristics of families have changed during the past 3 to 5 decades. Families without children younger than 18 years have increased substantially, and they are now the majority. The average age at marriage has increased, and a greater proportion of births is occurring to women older than 30 years. Between 1970 and 2000, the proportion of children in 2-parent families decreased from 85% to 69%, and more than one quarter (26%) of all children live with a single parent, usually their mother. Most of this change reflects a dramatic increase in the rate of births to unmarried women that went from 5.3% in 1960 to 33.2% in 2000. Another factor in this change is a slowly decreasing but still high divorce rate that is roughly double what it was in the mid-1950s. Family income is strongly related to children's health, and the financial resources that families have available are closely tied to changes in family structure. Family income in real dollars has trended up for many decades, but the benefits have not been shared equally. For example, the median income of families with married parents has increased by 146% since 1970, but female-headed households have experienced a growth of 131%. More striking is that in 2000, the median income of female-headed households was only 47% of that of married-couple families and only 65% of that of families with 2 married parents in which the wife was not employed. Not surprising, the proportion of children who live in poverty is approximately 5 times greater for female-headed families than for married-couple families. The comped families than for married-couple families. The composition of children's families and the time parents have for their children affect child rearing. Consequent to the increase in female-headed households, rising economic and personal need, and increased opportunities for women, the proportion of mothers who are in the workforce has climbed steadily over the past several decades. Currently, approximately two thirds of all mothers with children younger than 18 years are employed. Most families with young children depend on child care, and most child care is not of good quality. Reliance on child care involves longer days for children and families, the stress imposed by schedules and created by transitions, exposure to infections, and considerable cost. An increasing number and proportion of parents are also devoting time previously available to their children to the care of their own parents. The so-called "sandwich generation" of parents is being pulled in multiple directions. The amount and use of family time also has changed with a lengthening workday, including the amount of commuting time necessary to travel between work and home, and with the intrusion of television and computers into family life. In public opinion polls, most parents report that they believe it is more difficult to be a parent now than it used to be; people seem to feel more isolated, social and media pressures on and enticements of their children seem greater, and the world seems to be a more dangerous place. Social and public policy has not kept up with these changes, leaving families stretched for time and stressed to cope and meet their responsibilities. What can and what should pediatrics do to help families raise healthy and well-adjusted children? How can individual pediatricians better support families? FAMILY PEDIATRICS: The American Academy of Pediatrics (AAP) Board of Directors appointed the Task Force on the Family to help guide the development of public policy and recommend how to assist pediatricians to promote well-functioning families (see Appendix). The magnitude of the assigned work required task force members to learn a great deal from research and researchers in the fields of social and behavioral sciences. A review of some critical literature was completed by a consultant to the task force and accompanies this report. That review identified a convergence of pediatrics and research on families by other disciplines. The task force found that a great deal is known about family functioning and family circumstances that affect children. With this knowledge, it is possible to provide pediatric care in a way that promotes successful families and good outcomes for children. The task force refers to that type of care as "family-oriented care" or "family pediatrics" and strongly endorses policies and practices that promote the adoption of this 2-generational approach as a hallmark of pediatrics. During the past decade, family advocates have successfully promoted family-centered care, "the philosophies, principles and practices that put the family at the heart or center of services; the family as the driving force." Most pediatricians report that they involve families in the decision making regarding the health care of their child and make an effort to understand the needs of the family as well as the child. Family pediatrics, like family-centered care, requires an active, productive partnership between the pediatrician and the family. But family pediatrics extends the responsibilities of the pediatrician to include screening, assessment, and referral of parents for physical, emotional, or social problems or health risk behaviors that can adversely affect the health and emotional or social well-being of their child. FAMILY CONTEXT OF CHILD HEALTH: The power and importance of families to children arises out of the extended duration for which children are dependent on adults to meet their basic needs. Children's needs for which only a family can provide include social support, socialization, and coping and life skills. Their self-esteem grows from being cared for, loved, and valued and feeling that they are part of a social unit that shares values, communicates openly, and provides companionship. Families transmit and interpret values to their children and often serve as children's connection to the larger world, especially during the early years of life. Although schools provide formal education, families teach children how to get along in the world. Often, efforts to discuss families and make recommendations regarding practice or policy stumble over disagreements about the definition of a family. The task force recognized the diversity of families and chose not to operate from the position of a fixed definition. Rather, the task force, which was to address pediatrics, decided to frame its deliberations and recommendations around the functions of families and how various aspects of the family context influence child rearing and child health. One model of family functioning that implicitly guided the task force is the family stress model (Fig 1). Stress of various sorts (eg, financial or health problems, lack of social support, unhappiness at work, unfortunate life events) can cause parents emotional distress and cause couples conflict and difficulty with their relationship. These responses to stress then disrupt parenting and the interactions between parent and child and can lead to short-term or lasting poor outcomes. The earlier these events transpire and the longer that the disruption lasts, the worse the outcomes for children. The task force favors efforts to encourage and support marriage yet recognizes that every family constellation can produce good outcomes for children and that none is certain to yield bad ones. (ABSTRACT TRUNCATED)

摘要

为什么要成立家庭问题特别工作组?儿科学在许多方面与其他医学专科不同,其中之一是在为患者提供医疗服务时,几乎可以肯定会有家长在场。无论家长或其他家庭成员是否实际在场,他们的影响都是普遍存在的。家庭是儿童生活中最核心、最持久的影响因素。家长在儿科护理中也起着核心作用。儿童的健康和幸福与父母的身体、情感和社会健康、社会环境以及育儿方式有着千丝万缕的联系。儿童行为问题发病率的上升证明了一些家庭无力应对他们所面临的日益增加的压力以及他们对帮助的需求。当家庭的困扰通过孩子的症状表现出来时,儿科医生往往是家长寻求帮助的第一站。家庭之间存在着巨大的差异——家庭组成、种族和民族背景、宗教和精神取向、沟通方式、共度时光、对家庭成员的关爱、与社区的联系、经历以及应对压力的能力等方面都存在差异。在家庭内部,个体之间也各不相同。儿科医生对儿童之间的差异特别敏感——他们的气质和性格、先天和后天的能力,以及他们如何看待自己和对周围世界的反应。值得注意的是,大多数家庭运作良好,大多数孩子在生活中取得成功,这证明了父母的努力和孩子的适应能力。美国的家庭生活受到了广泛的审视和频繁的评论,然而即使这些活动有研究作为依据,它们往往也受到家庭内部个人经历以及关于社会和家庭生活应该如何的个人和文化信仰的影响。为儿科实践、公共政策、专业教育和研究制定建议的过程需要就一些关于家庭生活和家庭功能的核心价值观和原则达成共识,因为它们会影响孩子,同时要知道一些哲学上的分歧仍将无法解决。这个国家日益增长的多元文化特征可能会提高我们对多样性的认识。在过去的30到50年里,家庭的许多特征都发生了变化。没有18岁以下孩子的家庭大幅增加,现在已占多数。平均结婚年龄上升,30岁以上女性生育的比例更大。1970年至2000年间,双亲家庭中孩子的比例从85%降至69%,超过四分之一(26%)的孩子与单亲生活在一起,通常是他们的母亲。这种变化大多反映了未婚女性生育率的急剧上升,从1960年的5.3%升至2000年的33.2%。这种变化的另一个因素是离婚率虽在缓慢下降但仍然很高,大约是20世纪50年代中期的两倍。家庭收入与孩子的健康密切相关,家庭可获得的经济资源与家庭结构的变化紧密相连。实际美元计算的家庭收入几十年来呈上升趋势,但收益并未平等分配。例如,自1970年以来,有已婚父母的家庭中位数收入增长了146%,但女户主家庭仅增长了131%。更惊人的是,2000年,女户主家庭的中位数收入仅为已婚夫妇家庭的47%,仅为妻子未就业的双亲家庭的65%。毫不奇怪,生活在贫困中的孩子在女户主家庭中的比例大约是已婚夫妇家庭的5倍。家庭组成和父母陪伴孩子的时间会影响育儿。由于女户主家庭的增加、经济和个人需求的上升以及女性机会的增加,在过去几十年里,在职母亲的比例稳步攀升。目前,所有有18岁以下孩子的母亲中约有三分之二就业。大多数有年幼孩子的家庭依赖儿童保育,而大多数儿童保育质量不佳。依赖儿童保育意味着孩子和家庭的白天时间更长,日程安排带来的压力以及过渡造成的压力、接触感染的风险和相当高的成本。越来越多的父母也将以前用于陪伴孩子的时间用于照顾自己的父母。所谓的“三明治一代”父母被多个方向拉扯。家庭时间的数量和使用方式也随着工作日的延长而改变,包括上下班所需的通勤时间,以及电视和电脑进入家庭生活带来的影响。在民意调查中,大多数父母表示他们认为现在做父母比过去更难;人们似乎感到更加孤立,对孩子的社会和媒体压力以及诱惑似乎更大,而且世界似乎变得更加危险。社会和公共政策没有跟上这些变化,使得家庭时间紧张,压力重重难以应对并履行责任。儿科学能做什么以及应该做什么来帮助家庭培养健康、适应良好的孩子?个体儿科医生如何更好地支持家庭?家庭儿科学:美国儿科学会(AAP)董事会任命了家庭问题特别工作组,以帮助指导公共政策的制定,并就如何协助儿科医生促进家庭良好运作提出建议(见附录)。所分配工作的规模要求特别工作组成员从社会和行为科学领域的研究及研究人员那里学到很多东西。特别工作组的一位顾问完成了对一些关键文献的综述,并随本报告一同附上。该综述确定了儿科学与其他学科对家庭的研究存在趋同之处。特别工作组发现,关于影响孩子的家庭功能和家庭情况,我们已经了解很多。有了这些知识,就有可能以促进家庭成功和孩子良好结局的方式提供儿科护理。特别工作组将这种护理方式称为“以家庭为导向的护理”或“家庭儿科学”,并强烈支持将这种两代人方法作为儿科学标志的政策和实践。在过去十年中,家庭倡导者成功推动了以家庭为中心的护理,“即以家庭为服务核心或中心的理念、原则和实践;家庭是驱动力”。大多数儿科医生表示,他们让家庭参与孩子医疗保健的决策,并努力了解家庭以及孩子的需求。家庭儿科学与以家庭为中心的护理一样,要求儿科医生与家庭建立积极、富有成效的伙伴关系。但家庭儿科学扩展了儿科医生的职责,包括对父母的身体、情感或社会问题或可能对其孩子的健康、情感或社会幸福产生不利影响的健康风险行为进行筛查、评估和转诊。儿童健康的家庭背景:家庭对孩子的力量和重要性源于孩子长期依赖成年人来满足其基本需求。只有家庭才能提供的孩子的需求包括社会支持、社会化以及应对和生活技能。他们的自尊来自于被照顾、被爱、被重视,并感觉自己是一个共享价值观、开放沟通并提供陪伴的社会单位的一部分。家庭向孩子传递和诠释价值观,并且通常是孩子与更广阔世界的联系纽带,尤其是在生命的早期阶段。虽然学校提供正规教育,但家庭教会孩子如何在这个世界上相处。通常,关于家庭的讨论以及就实践或政策提出建议的努力会因对家庭定义的分歧而受阻。特别工作组认识到家庭的多样性,选择不基于固定定义来开展工作。相反,旨在解决儿科学问题的特别工作组决定围绕家庭的功能以及家庭背景的各个方面如何影响育儿和儿童健康来进行审议并提出建议。一个隐含地指导特别工作组的家庭功能模型是家庭压力模型(图1)。各种压力(例如,经济或健康问题、缺乏社会支持、工作不愉快、不幸的生活事件)会导致父母情绪困扰,导致夫妻冲突以及关系出现问题。这些对压力的反应随后会扰乱育儿以及亲子互动,并可能导致短期或长期的不良后果。这些事件发生得越早,干扰持续的时间越长,对孩子的后果就越糟糕。特别工作组赞成鼓励和支持婚姻的努力,但也认识到每种家庭组合都可能为孩子带来好的结果,而且没有一种组合肯定会产生坏的结果。(摘要截断)

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型,支持多种主流文档格式。

立即体验