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自闭症、唐氏综合征或脆性X综合征患儿母亲的心理健康与应对方式

Psychological well-being and coping in mothers of youths with autism, Down syndrome, or fragile X syndrome.

作者信息

Abbeduto Leonard, Seltzer Marsha Mailick, Shattuck Paul, Krauss Marty Wyngaarden, Orsmond Gael, Murphy Melissa M

机构信息

Waisman Center, University of Wisconsin-Madison, 53705, USA.

出版信息

Am J Ment Retard. 2004 May;109(3):237-54. doi: 10.1352/0895-8017(2004)109<237:PWACIM>2.0.CO;2.

Abstract

The psychological well-being of mothers raising a child with a developmental disability varies with the nature of the disability. Most research, however, has been focused on Down syndrome and autism. We added mothers whose adolescent or young adult son or daughter has fragile X syndrome. The sample was comprised of mothers of a child with fragile X syndrome (n = 22), Down syndrome (n = 39), or autism (n = 174). Mothers of individuals with fragile X syndrome displayed lower levels of well-being than those of individuals with Down syndrome, but higher levels than mothers of individuals with autism, although group differences varied somewhat across different dimensions of well-being. The most consistent predictor of maternal outcomes was the adolescent or young adult's behavioral symptoms.

摘要

抚养发育障碍儿童的母亲的心理健康状况因残疾的性质而异。然而,大多数研究都集中在唐氏综合征和自闭症上。我们纳入了那些青春期或成年早期的儿子或女儿患有脆性X综合征的母亲。样本包括患有脆性X综合征(n = 22)、唐氏综合征(n = 39)或自闭症(n = 174)儿童的母亲。患有脆性X综合征儿童的母亲的幸福感水平低于患有唐氏综合征儿童的母亲,但高于患有自闭症儿童的母亲,尽管在幸福感的不同维度上,组间差异有所不同。母亲心理健康状况最一致的预测因素是青少年或成年人的行为症状。

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