Dale Jeremy, Jatsch Wolfram, Hughes Nathan, Pearce Alison, Meystre Chantal
Centre for Primary Health Care Studies, University of Warwick, Coventry, UK.
BJU Int. 2004 Jul;94(1):63-9. doi: 10.1111/j.1464-410X.2004.04902.x.
To design, from first principles, a valid and reliable scale for assessing the importance of specific items of information needed by patients with prostate cancer that would be straightforward to use in clinical settings, as despite its prevalence, there is little research focusing specifically on the information needs associated with prostate cancer.
Several stages of consultation and modification were used to inform the development of a scale which was then piloted on 96 patients with prostate cancer. Respondents were asked to rate the importance they placed on a range of prostate cancer-related topics of information, and the extent to which they felt these information needs had been met. The construct and content validity of the instrument were established and an exploratory factor analysis used to guide restructuring of the tool. Internal consistency/reliability was calculated using Cronbach's alpha.
Using the scale showed that men with prostate cancer placed considerable importance on a broad range of information needs, most of which had been inadequately met. Age had a significant influence on the overall importance attributed to information, with younger patients having more need for information. The construct and content validity of the instrument were established. The factor analysis revealed four discrete factors which together explained > 68% of the variance, termed 'basics of prostate cancer care', 'disease management', 'physical well-being' and 'self-help'. Internal consistency/reliability was satisfactory (alpha = 0.91).
The basis of a tool capable of ascertaining the information needs of patients with prostate cancer was developed; it may offer clinicians a valid means of ascertaining information preferences and hence potentially enhance the quality of service provided. Further research is now required to refine the tool and test the effect of its longitudinal use in clinical practice on patient satisfaction and outcome.
从基本原则出发，设计一种有效且可靠的量表，用于评估前列腺癌患者所需特定信息项目的重要性，该量表在临床环境中易于使用。尽管前列腺癌普遍存在，但专门针对前列腺癌相关信息需求的研究却很少。
通过几个咨询和修改阶段来指导量表的开发，然后在96例前列腺癌患者中进行试用。要求受访者对一系列前列腺癌相关信息主题的重要性进行评分，以及他们认为这些信息需求得到满足的程度。确定了该工具结构和内容的有效性，并使用探索性因素分析来指导工具的重新构建。使用Cronbach's alpha计算内部一致性/可靠性。
使用该量表显示，前列腺癌患者对广泛的信息需求非常重视，其中大部分需求未得到充分满足。年龄对信息的总体重要性有显著影响，年轻患者对信息的需求更大。确定了该工具结构和内容的有效性。因素分析揭示了四个离散因素，它们共同解释了>68%的方差，分别称为“前列腺癌护理基础”、“疾病管理”、“身体健康”和“自助”。内部一致性/可靠性令人满意（α=0.91）。
开发了一种能够确定前列腺癌患者信息需求的工具基础；它可能为临床医生提供一种确定信息偏好的有效方法，从而有可能提高所提供服务的质量。现在需要进一步研究来完善该工具，并测试其在临床实践中的长期使用对患者满意度和结果的影响。
