White Mary C, Berger-Frank Sherri, Campagna Dave, Inserra Steven G, Middleton Dannie, Millette M Deborah, Noonan Curtis W, Peipins Lucy A, Williamson Dhelia
Health Investigations Branch, Division of Health Studies, Agency for Toxic Substances and Diseases Registry, USA.
J Expo Anal Environ Epidemiol. 2004 Nov;14(7):484-91. doi: 10.1038/sj.jea.7500391.
As a public health agency within the US Department of Health and Human Services, the Agency for Toxic Substances and Disease Registry (ATSDR) is responsible for implementing the health-related provisions of the Superfund Act. Much of its work is carried out to address health concerns in communities near sources of environmental contamination, usually in consultation with other local, state, and federal agencies. Over the last decade, ATSDR has considered, supported or conducted health investigations in a variety of different communities across the country. Communication with community residents has been an integral part of the process in all of these activities. The approach to communicating results needs to begin early by developing relationships and clarifying expectations, and it needs to remain flexible. Through examples taken from specific situations, we illustrate many of the lessons we have gained from trying to apply the principles of good community involvement to the design and conduct of health investigations and to the communication of study results.
作为美国卫生与公众服务部下属的一个公共卫生机构，有毒物质与疾病登记署（ATSDR）负责执行《超级基金法》中与健康相关的条款。其大部分工作是为了解决环境污染源附近社区的健康问题，通常会与其他地方、州和联邦机构协商进行。在过去十年里，ATSDR已在全国各种不同社区开展、支持或参与了健康调查。与社区居民的沟通一直是所有这些活动过程中不可或缺的一部分。结果沟通的方法需要从早期建立关系和明确期望开始，并保持灵活性。通过具体案例，我们阐述了在尝试将良好社区参与原则应用于健康调查的设计与实施以及研究结果沟通方面所获得的许多经验教训。
