Hantikainen V, Koller K, Grywa D, Niemi J, Välimäki M
Dozentin für Pflegeforschung, Nussbaumen.
Pflege. 2001 Apr;14(2):106-15. doi: 10.1024/1012-5302.14.2.106.
The study assessed the individual quality of life of people with schizophrenia who live in the supported group homes. Forty residents in seven group homes were interviewed using The Schedule for the Evaluation of Individual Quality of Life: A Direct Weighting Procedure Instrument (SEIQoL-DW). The SEIQoL-DW assesses the individualised QoL using semi-structured interview technique. The definition underpinning the SEIQoL-DW is that a person's QoL is what he or she determines it to be. The respondents defined the areas that are important to them, rated their current situation on each LQ-area as well as the relative importance of each area by using visual analogue scale (VAS 0-100). The mean QoL score was 64.71 (SD 19.05, range 6.81-93.49). A total of 18 QoL areas were formed of 200 individually nominated cues. The areas most frequently nominated by respondents were "human relations", "social life", "work", "leisure time", "finances and other material desires", "quality of living space", "autonomy" and "health". It showed clearly that nominated QoL-areas had for each respondent individual meaning as well as individual importance in his or her life. A positive correlation was found between length of stay in supported home and global quality of life. In addition, the respondents who had lived in supported home for a longer period rated their current situation higher with respect to autonomy, work and finding the meaning of life than respondents with shorter duration of stay. The individual nature of QoL was reflected in differences in QoL-areas defined, differences in levels of satisfaction, and differences in the relative importance of each LQ-area to individuals. The measures were generally acceptable, with all respondents showing great interest and being able of completing the SEIQoL-DW. This study showed also that instruments such as the SEIQoL-DW might have a therapeutic application for people with psychiatric disorders.
该研究评估了居住在支持性集体宿舍中的精神分裂症患者的个人生活质量。使用《个人生活质量评估量表:直接加权程序工具》(SEIQoL-DW)对七个集体宿舍中的40名居民进行了访谈。SEIQoL-DW采用半结构化访谈技术评估个性化的生活质量。SEIQoL-DW的基本定义是,一个人的生活质量由他或她自己决定。受访者定义了对他们重要的领域,使用视觉模拟量表(VAS 0-100)对每个生活质量领域的现状以及每个领域的相对重要性进行评分。生活质量平均得分为64.71(标准差19.05,范围6.81-93.49)。由200个单独提名的线索形成了总共18个生活质量领域。受访者最常提名的领域是“人际关系”“社交生活”“工作”“休闲时间”“财务和其他物质欲望”“居住空间质量”“自主性”和“健康”。这清楚地表明,对每个受访者而言,提名的生活质量领域在其生活中具有个人意义和个人重要性。在支持性宿舍的居住时长与总体生活质量之间发现了正相关。此外,在支持性宿舍居住时间较长的受访者在自主性、工作和找到生活意义方面对自己现状的评分高于居住时间较短的受访者。生活质量的个体性体现在所定义的生活质量领域的差异、满意度水平的差异以及每个生活质量领域对个人的相对重要性的差异上。这些测量方法总体上是可接受的,所有受访者都表现出极大的兴趣并且能够完成SEIQoL-DW。这项研究还表明,诸如SEIQoL-DW之类的工具可能对精神疾病患者具有治疗应用价值。