Eilertsen M-E B, Reinfjell T, Vik T
Norwegian Cancer Society Eirik Jarlsgate 6,7030 Trondheim, Norway.
Eur J Cancer Care (Engl). 2004 Sep;13(4):349-55. doi: 10.1111/j.1365-2354.2004.00496.x.
The aim of this study is to describe professionals' perception of collaboration and their evaluation of a professional collaborative model for children with cancer in mid-Norway. Health and non-health professionals from the families' home communities were invited to participate in the study. The selection was based upon professionals working with children treated for cancer at the Department of Paediatrics, University Hospital in Trondheim between 1990 and 1996. Ninety-one of 142 eligible professionals (64%) responded to a questionnaire. Both health and non-health professionals agreed that collaboration takes care of the family's situation (76%) as well as broadening their own knowledge (77%). Two-thirds considered they had received enough information necessary for follow-up care, however, only 28% believed that families were confident that professionals had this knowledge. More than 80% of professionals considered collaborative meetings and support groups, essential elements of the model, as being effective methods for follow-up care. However, only 39% of professionals had participated in collaborative meetings and 46% in support groups. In addition, only 26% received systematic supervision. Health and non-health professionals regard collaboration as being valuable in follow-up care for children, their families and professionals themselves. However, our results suggest areas of potential improvement in the existing model.
本研究的目的是描述专业人员对协作的看法,以及他们对挪威中部地区儿童癌症专业协作模式的评估。邀请了来自患儿家庭所在社区的卫生专业人员和非卫生专业人员参与研究。入选人员基于1990年至1996年间在特隆赫姆大学医院儿科接受癌症治疗的儿童的相关专业人员。142名符合条件的专业人员中有91名(64%)回复了问卷。卫生专业人员和非卫生专业人员都认为协作既考虑到了家庭状况(76%),也拓宽了他们自身的知识(77%)。三分之二的人认为他们已获得随访护理所需的足够信息,然而,只有28%的人认为家庭相信专业人员具备这些知识。超过80%的专业人员认为协作会议和支持小组(该模式的基本要素)是有效的随访护理方法。然而,只有39%的专业人员参加过协作会议,46%的人参加过支持小组。此外,只有26%的人接受过系统督导。卫生专业人员和非卫生专业人员都认为协作对儿童、其家庭以及专业人员自身的随访护理具有重要价值。然而,我们的研究结果表明现有模式存在有待改进之处。