• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

重度残疾儿童父母的经济和时间成本。

Financial and time costs to parents of severely disabled children.

作者信息

Leonard B, Brust J D, Sapienza J J

机构信息

Division of Human Development and Nutrition, School of Public Health, University of Minnesota 55455.

出版信息

Public Health Rep. 1992 May-Jun;107(3):302-12.

PMID:1534417
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC1403651/
Abstract

This paper considers the financial burden of parents caring for severely disabled children. A model to predict parents' out-of-pocket expenses and caregiving time demands is described. Discriminant analysis correctly classified high and low group membership for out-of-pocket expenses and caregiving time at 72 percent and 77 percent, respectively. Expected rates were 50 percent. Time spent caregiving was the best predictor for out-of-pocket expenses, and out-of-pocket expenses was the best predictor of caregiving time. A need-based approach for the distribution of resources that recognizes and adjusts for caregiving time and out-of-pocket costs is recommended.

摘要

本文探讨了照顾重度残疾儿童的父母所面临的经济负担。文中描述了一个用于预测父母自付费用和照顾时间需求的模型。判别分析对自付费用和照顾时间的高、低分组的正确分类率分别为72%和77%,预期正确率为50%。照顾时间是自付费用的最佳预测指标,而自付费用是照顾时间的最佳预测指标。建议采用基于需求的资源分配方法,该方法应考虑并调整照顾时间和自付成本。

相似文献

1
Financial and time costs to parents of severely disabled children.重度残疾儿童父母的经济和时间成本。
Public Health Rep. 1992 May-Jun;107(3):302-12.
2
A national profile of health care utilization and expenditures for children with special health care needs.一份关于有特殊医疗需求儿童的医疗保健利用和支出的全国概况。
Arch Pediatr Adolesc Med. 2005 Jan;159(1):10-7. doi: 10.1001/archpedi.159.1.10.
3
Health services use and health care expenditures for children with disabilities.残疾儿童的医疗服务利用情况及医疗保健支出
Pediatrics. 2004 Jul;114(1):79-85. doi: 10.1542/peds.114.1.79.
4
Financial burden of raising CSHCN: association with state policy choices.养育有特殊医疗需求儿童的经济负担:与州政策选择的关联。
Pediatrics. 2009 Dec;124 Suppl 4:S435-42. doi: 10.1542/peds.2009-1255P.
5
Does public insurance provide better financial protection against rising health care costs for families of children with special health care needs?公共保险能否为有特殊医疗需求儿童的家庭提供更好的经济保障,以应对不断上涨的医疗费用?
Med Care. 2008 Oct;46(10):1064-70. doi: 10.1097/MLR.0b013e318185cdf2.
6
Out-of-pocket health expenses for Medicaid and other poor and near-poor persons in 1980.1980年医疗补助计划及其他贫困和接近贫困人群的自付医疗费用。
Natl Med Care Util Expend Surv B. 1985 Aug(4):1-52.
7
Costs of caring for children with an intellectual developmental disorder.照顾智力发育障碍儿童的费用。
Disabil Health J. 2015 Oct;8(4):646-51. doi: 10.1016/j.dhjo.2015.03.011. Epub 2015 Apr 11.
8
Medical home and out-of-pocket medical costs for children with special health care needs.有特殊医疗需求儿童的医疗之家和自付医疗费用。
Pediatrics. 2011 Nov;128(5):892-900. doi: 10.1542/peds.2010-1307. Epub 2011 Oct 17.
9
Investigating parents/caregivers financial burden of care for children with non-communicable diseases in Ghana.调查加纳非传染性疾病患儿家长/照料者的护理经济负担。
BMC Pediatr. 2015 Nov 16;15:185. doi: 10.1186/s12887-015-0504-7.
10
Out-of-pocket health spending by poor and near-poor elderly Medicare beneficiaries.贫困和接近贫困的老年医疗保险受益人的自付医疗费用。
Health Serv Res. 1999 Apr;34(1 Pt 2):241-54.

引用本文的文献

1
Medical service utilization by children with physical or brain disabilities in South Korea.韩国身体或脑残疾儿童的医疗服务利用情况。
BMC Pediatr. 2023 Sep 26;23(1):487. doi: 10.1186/s12887-023-04309-2.
2
Child, Parent, and Family Adjustment for Patients Followed in a Multidisciplinary Spina Bifida Clinic.儿童、家长和家庭在多学科脊柱裂诊所接受治疗后的调整。
Top Spinal Cord Inj Rehabil. 2022 Summer;28(3):41-58. doi: 10.46292/sci21-00074. Epub 2022 Aug 17.
3
The heterogeneity in financial and time burden of caregiving to children with chronic conditions.照顾慢性病患儿的经济负担和时间负担的异质性。
Matern Child Health J. 2015 Mar;19(3):615-25. doi: 10.1007/s10995-014-1547-3.
4
Implications of childhood autism for parental employment and earnings.儿童自闭症对父母就业和收入的影响。
Pediatrics. 2012 Apr;129(4):617-23. doi: 10.1542/peds.2011-2700. Epub 2012 Mar 19.
5
Research governance and change in research ethics practices at a major Australian university.澳大利亚一所主要大学的研究治理与研究伦理实践的变化
Monash Bioeth Rev. 2011 Sep;29(4):16.1-7. doi: 10.1007/BF03351330.
6
Does private insurance adequately protect families of children with mental health disorders?私人保险是否充分保障有心理健康障碍儿童的家庭?
Pediatrics. 2009 Dec;124 Suppl 4(Suppl 4):S399-406. doi: 10.1542/peds.2009-1255K.
7
The well-being of parental caregivers of children with activity limitations.儿童活动受限父母照顾者的福祉。
Matern Child Health J. 2010 Mar;14(2):155-63. doi: 10.1007/s10995-008-0434-1. Epub 2008 Nov 26.
8
The personal costs of caring for a child with a disability: a review of the literature.照顾残疾儿童的个人成本:文献综述
Public Health Rep. 2007 Jan-Feb;122(1):3-16. doi: 10.1177/003335490712200102.
9
Impact of caring for children with special health care needs on the family: Rhode Island's experience.照顾有特殊医疗需求儿童对家庭的影响:罗德岛的经验。
Matern Child Health J. 2005 Jun;9(2 Suppl):S59-66. doi: 10.1007/s10995-005-4483-4.
10
Parental employment and health insurance coverage among school-aged children with special health care needs.有特殊医疗需求的学龄儿童的父母就业情况及医疗保险覆盖范围。
Am J Public Health. 2000 Dec;90(12):1856-60. doi: 10.2105/ajph.90.12.1856.

本文引用的文献

1
Cost-of-illness methodology: a guide to current practices and procedures.疾病成本法:当前实践与程序指南
Milbank Mem Fund Q Health Soc. 1982 Summer;60(3):429-62.
2
The financial burden of medical care expenses for children.
Med Care. 1986 Dec;24(12):1110-7. doi: 10.1097/00005650-198612000-00004.
3
Financing health care for disabled children.为残疾儿童提供医疗保健资金。
Pediatrics. 1988 Mar;81(3):385-94.
4
Family caregiver costs of chronically ill and handicapped children: method and literature review.慢性病和残疾儿童的家庭照料成本:方法与文献综述
Public Health Rep. 1989 Mar-Apr;104(2):158-63.