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健康连接与隐私:一个政策难题。

HealthConnect and privacy: a policy conundrum.

作者信息

Paterson Moira

机构信息

Faculty of Law, Monash University, Clayton, Vic 3800, Australia.

出版信息

J Law Med. 2004 Aug;12(1):80-90.

PMID:15359552
Abstract

A shared electronic health record is intrinsically privacy-invasive because it creates a comprehensive record for information-sharing. The author explains the significance of information privacy and why it is that health information warrants special protection. She also provides an overview of the existing regulatory framework and an evaluation of suggested options and proposals for addressing privacy-related issues. Her analysis of suggested consent models suggests that they ultimately involve a trade-off between privacy and the broader benefits promised by HealthConnect and that obtaining the right balance is essential if HealthConnect is to achieve optimal health outcomes.

摘要

共享电子健康记录本质上侵犯隐私,因为它创建了一个用于信息共享的全面记录。作者解释了信息隐私的重要性以及健康信息为何需要特别保护。她还概述了现有的监管框架,并对解决隐私相关问题的建议选项和提案进行了评估。她对建议的同意模式的分析表明,它们最终涉及隐私与HealthConnect所承诺的更广泛利益之间的权衡,并且如果HealthConnect要实现最佳健康结果,取得正确的平衡至关重要。

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