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先天性心脏病永远不会消失,即使已经得到“治疗”:患有先天性心脏病的成年人。

Congenital heart disease never goes away, even when it has been 'treated': the adult with congenital heart disease.

作者信息

Bhat Aarti Hejmadi, Sahn David J

机构信息

The Clinical Care Center for Congenital Heart Disease, Oregon Health & Science University, Portland, Oregon 97239-3098, USA.

出版信息

Curr Opin Pediatr. 2004 Oct;16(5):500-7. doi: 10.1097/01.mop.0000140996.24408.1a.

Abstract

PURPOSE OF REVIEW

As the specialties of pediatrics and pediatric cardiology continue to forge ahead with better diagnoses, medical care, and surgical results, an expanding population of patients with congenital heart disease (CHD) outgrows the pediatric age group, yet does not quite graduate to routine adult cardiology or general medicine. The adult with congenital heart disease (ACHD) faces medical, surgical, and psychosocial issues that are unique to this population and must be addressed as such. This review attempts to discuss and highlight some of the important advances and controversies brought up in the past year, in the care and management of these patients.

RECENT FINDINGS

The past five to 10 years have seen dynamic interest in understanding sequelae of corrected, uncorrected, or palliated congenital heart disease. The search for the ideal surgery, optimal prosthesis, and a smooth transition to adult care continues and is reflected in the vast amount of academic work and publications in this field. Of particular interest, conduit reoperations and single ventricle pathway modifications are still an art and a science in evolution.

SUMMARY

While all are agreed that there is a pressing need to focus on the delivery of care to the adult with congenital heart disease, this essentially requires a clearer understanding of late sequelae of CHD. The sheer heterogeneity of anatomy, age, surgery, and institutional management protocols can make it difficult to develop clear guidelines. This review attempts to give an up-to-date perspective on some of the new findings related to the more common lesions and problems faced in this group.

摘要

综述目的

随着儿科学和小儿心脏病学专业在诊断、医疗护理及手术效果方面不断取得进展,越来越多先天性心脏病(CHD)患者年龄超出了儿科范畴,但又尚未完全进入常规成人心脏病学或普通医学的诊疗范围。患有先天性心脏病的成人(ACHD)面临着该群体特有的医疗、手术及心理社会问题,必须予以针对性解决。本综述旨在探讨并强调过去一年中,这些患者的护理与管理方面出现的一些重要进展及争议。

最新发现

在过去五到十年间,人们对已矫正、未矫正或姑息性先天性心脏病的后遗症产生了浓厚兴趣。对理想手术方式、最佳假体以及向成人护理平稳过渡的探索仍在继续,这在该领域大量的学术研究和出版物中有所体现。特别值得关注的是,管道再次手术和单心室路径改良仍处于不断发展的技术与科学阶段。

总结

虽然大家都认同迫切需要关注患有先天性心脏病的成人的护理问题,但这本质上需要更清楚地了解CHD的晚期后遗症。解剖结构、年龄、手术方式以及机构管理方案的巨大异质性可能导致难以制定明确的指南。本综述试图就与该群体中更常见病变和问题相关的一些新发现提供最新观点。

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