Müller Thomas H, Adelhard Klaus
Institutefor Medical Informatics, Biometry and Epidemiology University of Munich, Marchioninistr. 15, D-813 77 Munich, Germany.
Stud Health Technol Inform. 2002;90:246-50.
A central repository for diagnostic information about individual patients was created as a service to diagnostic laboratories participating in the Compentence Network for Acute and Chronic Leukemias in order to support health care delivery to patients suffering from leukemia. During the diagnostic phase several specialised laboratories perform different assays on samples from the same patient. The use of these assays in the diagnostic process and during the treatment phase may be improved in terms of both rapid delivery and cost if any one laboratory is aware of preliminary or final results from the assay carried out in other laboratories. In order to support a more efficient communication of these results, a central diagnostic data repository (CDDR) was created and web-based user interface was developed. Currently, the CDDR maintains documents in the form of portable document format (PDF) files. Several other formats are accepted and converted automatically upon entry. Patient identification is accomplished by pseudonym rather than proper name and the data is held on the CDDR for a limited time interval to accommodate the stringent privacy regulations in Germany. The principle operation of a CDDR may also be applied to the diagnostic or therapeutic process of other diseases.
为了支持白血病患者的医疗服务，为参与急性和慢性白血病能力网络的诊断实验室创建了一个关于个体患者诊断信息的中央存储库。在诊断阶段，几个专业实验室对同一患者的样本进行不同的检测。如果任何一个实验室了解其他实验室进行的检测的初步或最终结果，那么在诊断过程和治疗阶段使用这些检测在快速交付和成本方面都可能得到改善。为了支持这些结果的更有效沟通，创建了一个中央诊断数据存储库（CDDR）并开发了基于网络的用户界面。目前，CDDR以便携式文档格式（PDF）文件的形式维护文档。还接受其他几种格式，并在输入时自动转换。患者识别通过化名而非真名完成，并且数据在CDDR上保存有限的时间间隔，以符合德国严格的隐私法规。CDDR的主要操作也可应用于其他疾病的诊断或治疗过程。
